Words

Diversity by Twinkle VanFleet

Diversity by Twinkle VanFleet

3 weeks solo and trying to decide whether or not to merge all of it here. All of it. The pain, the passion, all that purpose, essays, the filed away lyrics, the unpublished poems, the soft erotica, those short stories, the dances. Dances?

Words.

I’m guessing I’d have to show you, you’d have to read it for yourselves. 20 years of being out there and circulating already.

Expression, adjectives, descriptive, alluring.

Unrelated to the pain communities. Though I suppose that there would be relief, ease, laughter and a sense of distraction in what I could have been providing all along.

No worries.

It’s only just begun.

Again.

x

 

 

Control | Spoken Word

Control by Twinkle VanFleet

Control it
Hold it
(Down)

Rolling the dice (Gamble) (Rambling?)

Ascendancy
Enough of
(Play off?)

Regulate
Not anymore
(Keeping score?)

Oversight
Not really, though
(As above, so below)

california-state-capital-california-international-marathon-december-4-2016

California International Marathon, California State Capital December 4, 2016.

(Everything and nothing)

(Balance)

Ascertain
Rarely exists (Remain?)

Responsibility
Owning it
(Grow)

Authority
Consider this
(Risk)

Influence
Subsist
(With…?!)

Controlled

(Dismiss it)

Throw down
(Profound?)

Broken, hoping
(Coping)
Faded, Jaded

Climb, rhyme
(Time)
Sublime, realign.

©2016 Twinkle VanFleet. All Rights Reserved. Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

wwgrctwvf_rsdadvisory

Drop a Beat (Rap it Up)

By Twinkle VanFleet

Diversity by Twinkle VanFleet

Diversity by Twinkle VanFleet

Trip, slip, low to high,
They could’a killed you,
And you tried to die

Drop a beat,

‘N fuckin’ fly

Trip (Love that pen)
Slip (Fuck it 100 then)
Fly (Fly high over ‘n over again)

Fuck this shit (I’m in)
Just fly
Don’t let it pass by
(Don’t let anything fade by)

Stand out, step up
Dance
Rap it up

Smile (You’ve got that smile)
Laugh (Bring that pain down, awhile)

Break up (Break down)
Put it back together (Slow down)

Choose to live
Choose to die
Shit, just fuck ‘N Fly
It filled you up inside
For that moment you cried to die
(But you ain’t dyin’)

You chose to live (Still flying)
You gave to give (Still riding)
Now you’re chillin’ (Instead of dying) (No one’s dyin’)

You rose up
Yet you was hiding
Now you’re living, again
Instead of dyin’

Stand out, step it up
Dance!
Rap it up

Wrap that shit side up, let it go
Dance
On the reg, on the rise,
During the slip and the slide
Over the side
All alright now,
Deuces high

You know what

Jus’

 

Smile (Love that smile)
Laugh (Pain down, relaxed)

Rap ‘N Wrap it up (Don’t stumble over it. Shit tho’ gotta rise over it)
High fly, word! ai’ght…

Drop another beat, get on with it.

Rap it up.

©2016 Twinkle VanFleet/Golden Rainbow Poetry/All rights reserved. Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

 

 

All She Wanted

by Twinkle VanFleet
All she wanted to do is live
All she wanted to do is dance
All she wanted to do is give
Trust in something and forgive

All she wanted was to care
All she wanted was to be
All she wanted for is hope
All she prayed for was the chi

All she wanted was to love
All she wanted was to rise
All she wanted was for them
And be cherished in his eyes

 

Twinkle V March 16.16 -2

 

All she needed was to survive
All she wanted was to keep dancing
If not in body;  soul, heart and mind
All she needed was to be worth having

All she knew was a world ahead
All she gave was it’s pain
All she meant was to take it away
In His name, she did pray

Pain, passion, purpose. Deuces High
Stronger Than Pain to stay alive
Ride, die or fly
Simpli(y) justified.

Twinkle VanFleet: ~TVa Sig

©2016 Twinkle VanFleet/Golden Rainbow Poetry/All rights reserved. Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

Thrive | Casting Crowns

“We know we were made for so much more
Than ordinary lives
It’s time for us to more than just survive
We were made to thrive”

“Thrive”

Here in this worn and weary land
Where many a dream has died

Like a tree planted by the water
We never will run dry

So living water flowing through
God we thirst for more of You
Fill our hearts and flood our souls
With one desire

Just to know You and
To make You known
We lift Your name on High
Shine like the sun make darkness run and hide
We know we were made for so much more
Than ordinary lives
It’s time for us to more than just survive
We were made to thrive

Into Your word we’re digging deep
To know our Father’s heart

Into the world we’re reaching out
To show them who You are

So living water flowing through
God we thirst for more of You
Fill our hearts and flood our souls
With one desire

Just to know You and
To make You known
We lift Your name on High
Shine like the sun make darkness run and hide
We know we were made for so much more
Than ordinary lives
It’s time for us to more than just survive
We were made to thrive

Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible

Just to know You and
To make You known
We lift Your name on High
Shine like the sun make darkness run and hide
We know we were made for so much more
Than ordinary lives
It’s time for us to more than just survive
We were made to thrive

Hey!

We were made to Thrive

We were made to Thrive…..
Thrive!

Over

In the last week I’ve shared about 6 video’s in the raw. Unedited, me without make up, me with make up, me just going on about the last few months or more, blah blah.

I made it 15 years. I made the last 10 with SCS, medication and functional restoration and the last 4 by medication management, SCS, and home functional restoration enough to help me set goals and achieve them. Sometimes it can really take time to get unstuck from the pain cycles, the why me’s, sulking pity party. I busted my butt, learned, wanted to learn, and aside from a patient, I’m a caregiver too. Hard? It has to be done.

So many times I’ve had to alter my list of the 3 most important tasks needing done in a day. I’d move the least important to the top of the following day’s list. All those little tricks and things I’ve learned over the years that hang out in my toolbox of survival mechanisms.

I knew it was almost over. I just never imagined it would be by the hands and decisions of others/provider’s before giving up of my own. I just didn’t think…  of all the thinking I do that my award also became part of my end. I worked hard for that. Decades for that. Unpaid for that.

Spontaneous? Not really. I messaged my mom to have my Advanced Directive revoked and destroyed. I’ve tried to and I haven’t been able to get them back. It was Valentine’s Day, I called the radio station The new STAR and dedicated a song to my man. I’ll hold back on that song title right now. I took the last walk I ever thought I’d walk. It was long and hard, and I had to sit on people’s lawns or lean against trees or mailboxes and it was really only a little farther than end of our block.

Am I a quitter, a coward? Perception.  A quitter and a coward would have never rolled into those headlights, but let’s be fair, I haven’t quit yet.

I was already in withdrawal, unstable, but woke up to a nice day. It was all good until I re read the first denial letter stating those 2 medications (Cymbalta and Zonegran) weren’t medically necessarily and not supported by the California MTUS (Yes they are). It also claimed that due to the doctors report it was left to interpretation on a couple of matters and one of them was that those 2 medications didn’t reduce my potential for abuse or minimize my current opioid use. Seriously?!!

I appealed and I won. No potential for abuse or misuse and both medically necessary.

Approved on appeal February 16, 2016.  I’m still not on them, nor am I on any pain reliever at all.

I can get through the 7’s, bouncing 8’s and 9’s. I can use my tools to bring those 8/9’s down enough to level myself. I couldn’t handle the 9/10 I couldn’t bring myself out of it. The physical 9/10 that can make you lose your mind. Why? Because it’s in your mind where you’re coping abilities and strategies are.

Already living in your head all day just to manage your 7, see what happens when 10 comes and there isn’t any help. I’ve rarely used 10 in my entire life, I seldom use 9, except to acknowledge it gets there off and on throughout any day for seconds, minutes, hours.

10 though! I drank that bottle, intoxicated, drunk, I could care less about labels because I hit the ground on my stomach and face so hard I passed out. Somnolence, narcoleptic episodes (diagnosed) or alcohol, perhaps a combination of each. Though my husband said he dropped me as I was leaning against him.

I walked out of our gate and stood against our lamp post. Husband came out and told me to go back inside. I wasn’t doing anything but standing there, reflecting, thinking, but then…

He started grabbing me to lead me in and a lady called the Sheriff’s Department on him for abusing me. He wasn’t, but he was in my space and I just wanted to chill. I was sure to tell her that he didn’t hurt me, beat me, abuse me and that I was fine. I was. I think.

Our street, people drive down it like there is no road and a speed limit doesn’t exist.

That was my out! I laid down in the center of the street, spread my arms and my legs as best as I could and I could see headlights flying right for me. Am I mad I was pulled out of the street? A little. Why would I ever think to let a driver be responsible for killing me. Well how about this, slow down and do the speed limit. Everything is a learning experience.

The unbelievable inaccuracies in my medical records are nearly beyond fixing. Medications listed I’m not even taking, and a few for more than a year. I’ve updated again since my release and tonight I peeked at my Patient EMR. They’re all still listed. So the medications go on the record, but they don’t come off? There’s a difference between previously taken medications (inactive) and medications currently taking (active). It say’s I’m on 11 medications including 2 opioids, a benzo, oic med, lidoderm patches, cymbalta, and zonegran and I”M NOT!  Lisinopril, Hydralazine, Atorvastatin and Nuvigil. That is what I’m on. 4 medications. Red flag above 7, did you know that? So yes, I’ve been red flagged and it’s flying the wrong way.

I’m sorry to the Sacramento County Sheriff’s Department, the Metropolitan Fire Department and the EMT and probably ambulance driver too. I didn’t trust you.

When you asked if I was in pain? I told you I wouldn’t tell you even if I was… Because… I wasn’t going to have in my record an opioid pain reliever documented as given to me. Yeah I suffered and I suffered for not being truthful. I’m learning though that truth and honesty is just someone elses made up lies. Unfortunate casualties of the world we live in.

To the Officer that lacked a little faith, I pray I left you with something. Heart! Have a little faith that sometimes not everyone is who the rest of the world made us out to be.

I’m not sorry for the actions that led to my consequences or my responsibility in it. It’s forever now.  I’m glad I screamed all the policy issues going on and made it loud and clear for blocks. I’m sorry for all those who played a part and either bailed or covered their own asses. I’m sorry for all those who think relieving pain leads to misuse, abuse and heroin above the overdoses that are self inflicted one way or the other.

Who ever thought it’d be me? No one!

Courage - Your fear

Goals? Get my lyrics out to those who’ve been interested and play that part of a lifetime. Really though, I’ve already done everything I wanted. From Poster Girl to TV Commercial, being published by my 20’s, being a part of Sacramento history in the news, hard copy, on the news live, iPain Foundation, my own endeavors. All in the background from my space, my cubby.

I’ll either fly off this earth by the grace of God, or by my faith in options. Take that as you will. I’ve had to choose, make choices, decisions, options to save my own life. My own!

Still not what you would simply assume.

I don’t hardly care about much right now because I can’t fix me enough to put in the few hours a month I had been to help others. I’m numb and it’s not the numb I wish it was. It really is easy to rectify wrongs, accidents, mistakes, oversights, correct errors and be responsible for your own actions. It really is easy to do. The only reason someone would choose not to is to hide their own guilt and be unable or against a face to face with you in the presence of a sit down meeting with lead staff for a reconciliation. I feel bad about that and I shouldn’t because I did move to rectify and was denied. I was even denied the 30 days of “emergency care” allotted by law when being dismissed by a provider.

I am grateful for the person who provided LLLT and Bowen Therapy yesterday. Bowen might take a few more times. LLLT I’ve done a few times before. The only “maybe” for months.

Really though, my problem is that I care too much but I think that’s been back handed out of me. None of this is finished, some has only just begun and the rest well…  it is what it is, for now.

Over and…

out.

 

The Body, Mind and Spirit; Humanizing the Soul

https://rsdadvisory.com/2016/02/11/the-body-mind-and-spirit-humanizing-the-soul/

It Really Hurts to Hurt | Live On. Give On.

https://rsdadvisory.com/2016/03/20/it-really-hurts-to-hurt-live-on-give-on/

The Unintended Side Effects of Fighting Prescription Drug Abuse by Twinkle VanFleet

The California Progress Report January 8, 2015

http://www.californiaprogressreport.com/site/unintended-side-effects-fighting-prescription-drug-abuse

Bracelets; Lockdown; Profound and Letdown

https://rsdadvisory.com/2016/02/26/bracelets-lockdown-profound-and-letdown/

Just One More Step

By Twinkle VanFleet

Twinkle V and Baby Ozra 1997

My baby son and I- West Sacramento- Spring, 1997

I fight, you fight,
We fight together.
You fight, I fight,
We win forever.

“Just one more step, Mama!
Just one more step”
The little voice echoed,
Made it over the doorstep.

Let go, let go!
Neighbors gathered around,
She spread her wings,
The sticks hit the ground.

The little boy beamed,
In the crowd of praise.
Flying solo,
Because of him, she prayed.

I fight, you fight..
For that one more step!
You fought, I fought!
Haven’t stopped yet.

(Hook)
Step up, step down,
Step in, step out,
Step to, step from,
Just one more step Mama!
Just one more step!
Step it up, Step!
Just one more step Mama
Just one more step.

Just one

one

one

Just one more

(Chorus)
I fight, you fight
We fight together
You fight, I fight
We win forever

(Fight! we fightin’ it)

(Fight it)

(Just one more)

(All it takes)

(Just that one)

I fight, you fight..
For that one more step,
You fought, I fought
Haven’t stopped yet.

(Still fighting)

(Steppin’)

(You Steppin’)

(Just one more step, mine)

We haven’t stopped yet

Twinkle VanFleet and son Ozra #NERVEmber 14, 2014

#NERVEmber 14, 2014 Power of Pain Foundation National P.A.I.N Summit

©2015 Twinkle VanFleet/Golden Rainbow Poetry/All rights reserved. Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

“I fight, you fight, we fight together” ©Kurtis V.

This quote has been on the internet for over a decade. It originated from my 3 year old son. I carried those words online. They came from the mouth of a babe for his mama (me). On the internet it’s ©Kurtis V. Kurtis V is Kurtis VanFleet a.k.a Kurtis Ozie, Ozie and Ozra.