A Comprehensive Compilation of RSD(S)CRPS Related Resource Links


The following is a list of resources I’ve compiled through research. My passion is to promote awareness and understanding in regards to RSD(S)/CRPS, Reflex Sympathetic Dystrophy Syndrome, also known as, Complex Regional Pain Syndrome and other illnesses and information directly or indirectly associated to it. Some links may be repetitive. There is still no cure to date. ~twinkleEKV/rsdcrpsfire

Power of Pain Foundation

http://www.powerofpain.org

Barby Ingle Best Selling Author and Motivational Speaker

http://www.barbyingle.com

TDI- Thermographic and Diagnostic Imaging

http://www.linkedin.com/company/3115673?trk=tyah

RSD Carers
RSDcarers@groups.facebook.com
Chronic Pain Connect
chronicpainconnection@groups.facebook.com
Caring for Disabled People
http://carersfordisabledpeople.webs.com

RSD CRPS News

http://www.rsds-crps-news.blogspot.com/

American Pain Foundation
Log in Page
http://painaid.painfoundation.org/login.php?page=

United States Department of Human Services
http://www.hhs.gov/

Clinical Trials.gov
http://clinicaltrials.gov/

RSDS – CRPS News
http://rsds-crps-news.blogspot.com/

Psychiatric Times- RSD
http://www.psychiatrictimes.com/showArticle.jhtml?articleID=189500108

NIH Pain Consortium
http://painconsortium.nih.gov/pain_index.html

National Institute of Arthritis and Muscularskeletal and Skin Diseases
What is Fibromyalgia?
http://www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm

Coalition of professional and voluntary organizations concerned with the programs of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
http://www.niams.nih.gov/hi/coalition/resources.htm

Reports
Congressional Justifications
http://www.niams.nih.gov/ne/reports/congree_rep/cj2001/significitems.html

WorkCompCentral
http://www.workcompcentral.com

Workers Compensation Action Network
http://www.fixworkerscompnow.org/

Lawyers.com
Workers Comp
http://www.lawyers.com/lawyers/C~P~California~Employment~Workers%20Compensation~LDS~City.html

Research Legal Topics
http://www.lawyers.com/legal_topics/browse_by_topic/index.php?site=&eid=

Support and Chat Groups

In His Hands with RSD
http://groups.msn.com/InHishandswithRSDandChronicPain

Pain Pals
http://www.angelfire.com/me2/rsdpainpals/links.html

Pumpsters (Intrathecal pumps)
http://health.groups.yahoo.com/group/pumpsters/

I Village RSD Chat Community
http://messageboards.ivillage.com/iv-bhrsd/

Social Security and Workers Compensation

National Organization of Social Security Claimant’s Representative (NOSSCR)
http://www.nosscr.org/

AFL/CIO Web Site
http://www.aflcio.org/

All 50 States
http://www.comp.state.nc.us/ncic/pages/all50.htm

Injured Workers of America
http://www.injuredworkers4change.org/injured.htm

Job Accommodation Network
http://janweb.icdi.wvu.edu/

Workers Comp Rx
http://www.workerscomprx.com/main.asp

Pain

Central Pain Syndrome Alliance
http://www.centralpain.com/

Pain and Health
http://www.painandhealth.org/

Rehabilitation Facilities
http://www.carf.org/

Office of Rare Diseases
http://rarediseases.info.nih.gov/

National Foundation for the Treatment of Pain
http://www.paincare.org/

NINDS
http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/reflex_sympathetic_dystrophy.htm

NIH Pain Consortium
http://painconsortium.nih.gov/

NORD
http://www.rarediseases.org/

Partners Against Pain
http://www.partnersagainstpain.com/

Pain.com
http://www.pain.com/

Health

NEADS (Dogs for Deaf and Disabled Americans)
http://www.neads.org/index.shtml

CareGiver.com
http://www.caregiver.com/

RSD Org (Directory)
http://www.rsd.org/index.asp

Sympathetic Dystrophy (Directory)
http://www.tunu.com/sear/r/e/Reflex_Sympathetic_Dystrophy.html

Associations

American Acadamy of Physical Medicine and Rehabilitation
http://www.aapmr.org/

American Acadamy of Pain Management
http://www.aapainmanage.org/

ACPA (American Chronic Pain Association)
http://www.theacpa.org/

American Pain Foundation
http://www.painfoundation.org/

APS (American Pain Society)
http://www.ampainsoc.org/

IASP (International Association for the Study of Pain)
http://www.ampainsoc.org/

Medical Societies

ASA (American Society of Anesthesiologists)
http://www.asahq.org/

Diplomats of the American Board of Pain Medicine
http://www.abpm.org/diplomates/index.html

PainEDU
http://www.painedu.org/

National Hyperbaric Oxygen Therapy
http://www.rsdtherapy.com/?gclid=CO6R4o-Ip4UCFQvOJAodNShW0A

Informative Links

RSD Advisor- http://www.rsdadvisor.com

Clinical Research Studies- http://clinicalstudies.info.nih.gov/detail/A_2000-NR-0200.html

Tame the Pain- http://www.medtronic.com/neuro/ttp/index.html?c=overture_ppc&kw=rsd

American RSDHope- http://www.rsdhope.org/

Aware RSD- http://www.aware-rsd.org/

Neurology Channel- http://www.neurologychannel.com/rsd/

Reflex Sympathetic Dystrophy Syndrome America- http://www.rsds.org/index2.html

Microsurgeon.org- http://www.microsurgeon.org/rsd.htm

AboutRSD- http://www.aboutrsd.com/

Pain.com- http://www.pain.com/

RSD Online- http://www.rsd-online.org/

Reflex Sympathetic Dystrophy Association of California- http://www.rsdsa-ca.org/

Treatment, Education and research- http://www.rsdrx.com/index.html

RSD Friends- www.rsdfriends.org

RSD Info- http://www.rsdinfo.com

RSD Awareness- www.rsdawareness.com

RSD Escape- www.rsdescape.com

Sympathetic.org- http://www.sympathetic.org/

RSD Foundation- www.rsdfoundation.org

Podiatry Channel- http://www.podiatrychannel.com/rsd/

RSD Care- www.rsdcare.com

For Grace.org- www.forgrace.org

California RSD Lawyers- http://www.california-rsd-lawyers.com/

National Institutes of Health
http://www.nih.gov/

Division of Thoracic & Foregut Surgery
http://www.stronghealth.com/services/surgical/thoracic/RSDS.cfm

Sudeck`s dystrophy
http://www.sudeck-dystrophy.com/

Pain Defeat
http://www.paindefeat.com/wiki/PDFT/RSDS

© 2005-2015 Twinkle VanFleet  RSD(S)-CRPS Advisory.com
Please credit source. I’ve reviewed each site to compile this list for you. Thank you

13 thoughts on “A Comprehensive Compilation of RSD(S)CRPS Related Resource Links”

  2. Greetings Liz

    Thank you! I have spent months researching these sites to compile this list. It is my hope that others find the information they need here. It is my continued passion to promote awareness for RSD/CRPS sufferers. ~smiles

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  3. Bush and the Republicans were not protecting us on 9-11, and we aren’t a lot safer now. We may be more afraid due to george bush, but are we safer? Being fearful does not necessarily make one safer. Fear can cause people to hide and cower. What do you think? Why has bush turned our country from a country of hope and prosperity to a country of belligerence and fear.
    If ever there was ever a time in our nation’s history that called for a change, this is it!
    We have lost friends and influenced no one. No wonder most of the world thinks we suck. Thanks to what george bush has done to our country during the past three years, we do!

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  4. Why not add this site to your list? It is full of good information, research, news. treatments and survival tips. It is the Canadian organization which helps those in canada.

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  5. Pingback: anime girl gun

  6. I have suffered from RSD since 1997. I live in the UK, Which is not that good at dealing with RSD CRPS. I have funded and started my own Forum. I would like to know if we care share links.

    Kind Regards
    Paul

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  7. Thank you for this great resource! Praying for a cure and change in how RSD is treated, researched and for a Patient Protection Bill for those with RSD disability due to injury at a medical institution.

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  8. Kupując produkty jakie mają stanowić elementy dekoracji naszego
    domu spośród jednej strony musimy brać pod spodem uwagę elementy estetyczne takich
    produktów, a spośród drugiej strony nie możemy zapominać, i o jakości kupowanych produktów.

    Jakość w znacznym stopniu przekłada się na trwałość, azali trwanie
    użytkowania kupowanych za pomocą nas materiałów
    wykończeniowych, azali mebli. Obecnie jesteśmy w stanie brać za dobrą monetę komody stylowe poszczególne meble, które są po mistrzowsku dopasowane aż
    do stylistyki jaką zamierzamy zastosować w naszym domu.

    Z jednej strony możemy predestynować

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  11. They compare very favourably with others on muscle factor x the market right now will build
    any kind of strain or sprain. I don’t know what to eat now.
    Relax your shoulders and triceps, with core involvement as well.

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  12. Have RSD/CRPS x 12 years. So very much appreciate your work you have done on this page to bring all this info together AND have the latest treatments, info here also. Bravo!! Thank you!!

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