I shared previously my excitement of being a Nana again.
Many of you know my son from our advocacy days together. Others know him from his music and lyric. Perhaps some of you know both.
Ozra joined me in CRPS/RSD and health advocacy in his young youth. In fact, my oldest grandson did, also.
My son’s hobby is music, writing verse, performing. Expression. He had a severe traumatic brain injury at 14, so I’m quite proud of him. The majority of people can’t tell that he lives with residual damage to his brain. It’s an invisible disability. In addition to the other brain injuries, his frontal and temporal lobes were danaged. He attended speech therapy for some time after his lengthy intensive care hospitalization.
He hasn’t been able to smell since. It’s been 10 years.
His 2 year marriage anniversary was July 1st. His beautiful, loving, supportive wife conceived Ezekiel a few months later and Greyson was within a few short months of Zeke’s birth.
His school implemented a 504 Plan for him. I never applied for disability for him.
The 504 Plan is a plan developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives accommodations that will ensure their academic success and access to the learning environment.
He wasn’t allowed to return to school for several months after recovery and healing. He then returned briefly and it didn’t work out. They encouraged the filing for disability and labeling him. Separate segragated learning instead of main stream with all his peers. Nah. This might be a good thing for some children, I don’t know. It wasn’t for us.
I removed him from public school and home schooled him until he graduated high school. He never really attended in person high school. Initially he was a semester behind, yet he recieved his diploma on time.
His teenage years was filled attending Church, youth events, and volunteering. This let him be around people and build his social and communication skills. He did miss out on those high school years though.
Some people were like wow with his first son, and then double wow with his second. My son is 24.
Times were different but I had 2 daughters 12 months apart by 20. He has 2 sons, 12 months and 3 weeks apart at 24. Perfectly okay.
He’s always earned good money. He began working soon after his TBI recovery. He was 15 then. He earns a good living even now. His wife earns well, too. Team work makes the dream work.
See why I’m proud? And ecstatic?
I can’t help but wonder if I had listened to the school and complied with the status and decisions for my child if my son would have ever excelled in the capacity that he has.
My gut tells me he would not have.