My week in review June 28, 2015 – July 4, 2015
I’ve been excited waiting for my mom to get here from Georgia. I’ve only seen her a few times in the last 18 years. When my son was little and a few years after the injury that led to my CRPS, we got on a Greyhound bus and traveled 2 and half days to Columbus Georgia and then back again 2 weeks later. Kurtis was only 3 when I was first injured, so he learned right away how to be a caregiver. We had a back pack full of snacks and little drinks for the trip so that walking during layover’s wouldn’t be difficult. Some people feel that leashes are cruel, but in fact I was leashed to Kurtis. We were connected to each other by a clip at the waist of our belt loops. We each wore identification around our necks with where we came from and where we were heading to. Mine included medical information. The Lis Franc screw in my right foot had already been removed and I had already done the nearly 9 months of intense physical therapy just to be able to walk again.
Kurtis use to tell me and was the one to tell me when I took my first solo step, “Just one more step mama, just one more step”. The words of a 4 year old. I think he was 5 when we were off to Georgia. “Together, we can” and we did! His quote that’s made it around the web for over 10 years “I fight, you fight, we fight together” was from him to me and me to him as it was he and I together during that time when I couldn’t weight bare at all. My husband worked 10’s so was away 12 hours a day, transportation time included and our girls full time in school.
I saw my mom again in 2008 when our daughter Rikki graduated from boot camp and AIT in the Army. Mom wasn’t far from where our daughter was, so we all met up. It was a great reunion and a super proud day as parents. My girls and I flew out a few years back, but Kharisma and I were only able to stay 3 days. This time my mom, step dad and sister niece are driving here. Will have about 4 days with them. I call Rosie my sister niece because she is my niece, but my parents have raised her since she was a baby. That makes her my sister, too.
Earlier this week one of my children became a coroner’s assistant working for the State. Crime scenes, retrieval of the decreased, and transport. Another of my children took oath to defend the Constitution of the United States and the State of California. For my oldest child we are still working on moving forward with her care. She is still working.
I was finally able to start updating my website. I imagine it will still take me sometime to get it back in order. It is one of the oldest CRPS/RSD sites on the web beneath the RSDSA, the RSDHope and a couple of others. Working on other projects, too.
I had my ultrasound on Monday. My doctor phoned with results late Tuesday morning. Repeat in 7 weeks due to one of the cysts doubling in size. It’s a little under 2 inches now. The ultrasound caused a side effect, by no means her fault, just part of the issue at hand, so I’ve been dealing with that again.
My husband surgery was rescheduled and is now the 10th of July. Ironically, the same day my mom will be here. Hopefully we will be back home from the hospital early that day and all is successful for him. It is outpatient at this point.
And finally we are going to our daughter’s this evening for a little BBQ for the 4th.