A Bit of Hope

A Bit of Hope

By Twinkle VanFleet

shutterstock_129078545 - GodsHand

A hand reached out from heaven,

And lifted her toward the sky,

She saw a glimpse of heaven,

Through the twinkle in his eyes.

I give to you the world,

There you will change many lives,

Because of you, they will love me,

They will see me… the spirit,

Through your eyes.

 

I gave to you hope,

You will always hope for them,

I gave to you a voice,

Use it now and again.

I gave you a golden heart,

So it may always be true,

I gave to you the personality,

I made not another soul like you.

You will always shine,

Like stars of the night-light,

You are a special one,

From the dust,

I made you right.

 

Your words will teach them,

Only a few and I will understand,

His heart will love you,

He receives from me your hand.

Teach them the truth,

You will know what it means,

You will be the many winds,

Beneath his wings.

 

He will cherish you, but

Your own heart will cherish him more,

Together, you must share with the world,

My hopes and dreams

Hope is what I made you for.

©1995-1999-2015 Twinkle wood-VanFleet/Golden Rainbow Poetry/All Rights Reserved. First publication: by Golden Rainbow Poetry licensed as a small business in the City of West Sacramento, CA. 1995. OL- 2007. Written 30+ years ago. Slightly altered from original.

Flash Flood

by Twinkle VanFleet

Image Credit- Blossom of Heaven by Delere

Image Credit- Blossom of Heaven by Delere

Flash flood,
Almost could’ve.

Bled out,
Still hoping about.

High risk,
Twice amiss.

Damaged,
Let go.

Oh my!
What do ya know.
Smiling,
Whoa!

Wait!
“What do you mean?”
Flash Floods,
Just a bad dream.

Break down, shake down,
Advisement under care.
Back down, throw down,
Submission to despair.

Let down,
No one around,
Breathe!
3 abound.

Flash Flood,
Back into the blood.
Always there,
Forever loved.

©2015 Twinkle Wood-VanFleet/Golden Rainbow Poetry/All Rights Reserved.

Copyright Laws and Regulations of the United States  http://www.copyright.gov/title17/

17

By Twinkle Wood-VanFleet

For my husband Erik VanFleet

 

If 17 could last forever, my flight just left the ground-

 

Heading for my home town, young and summer bound.

 

If 17 might last forever, oh yes! That’s where I’d be-

 

Ssh! Can you feel that moment, the first time you laid eyes on me.

 

Listen! Can you hear the music? Would you have looked my way again?

 

Would the song still be playing, or ending just as friends?

 

If 17 could last forever, still at the river, in the sand?

 

Or strolling through Old Sac, while walking hand in hand.

 

Hey! Can you feel the summer time heat? June through hot August nights-

 

Our first night at Garcia’s Bends, together beneath the moonlight.

 

Oh! Can you feel that memory, as you first took me in your arms?

 

If that summer had just begun, would you still shower me with charms?

 

If 17 would last forever, could you have loved me in the end?

 

I just close my eyes and remember, I’m still 17 again.

17 - Twinkle V.

17 – Twinkle V.

©2001-2015 Twinkle Wood-VanFleet/Golden Rainbow Poetry/All Rights Reserved.

For viewing purposes only. May not be copied, reproduced or altered in any way without permission. Published at several poetry sites throughout the years. Originally published by Golden Rainbow Poetry licensed as a small business in the City of West Sacramento 1995. OL- 1997. Written in the 1990’S.

Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

Family, Indie, Pain

Squirrel! But it really was. I’ve been staring out the window watching it for 30 minutes now. Running along the back fence, through the branches of the large tree that’s limbs cover the roof above my bedroom. It’s green, brown and yellow-gold leaves scattered about the ever-changing arms of fall. I gazed over as the quick little animal hurried over the Tuff Shed, back along the other side of the fence and eventually disappeared again. And then I was reminded of all the distractions.

The day before we left for the Stanford transplant center on behalf of our daughter for the second time in a month, my 6 month old puppy Independence stopped eating, drinking, became lethargic, ceased playing. No more kisses, no more loves, no greets. He’s always extremely perky, playful and active. He loves his ropes, always tugging with me, but not anymore. This was on Wednesday, the 14th that this began. We’ve already spent $2,000 saving one puppy many years ago from Parvo, nearly lost another that I was able to save by IV home care I’m not sure what’s the matter with Indie. I know, take him to the vet, but unfortunately it’s not an option. If you’ve been following any of my story relating to our daughter, no matter how much I want to and wish that I could I’m just not able.

Independence (Indie) October 6, 2015

Independence (Indie)
October 6, 2015
Before he became sick.

I started force feeding him sugar-water on the 14th. Other than in the A.M. I was gone all day on the 15th and didn’t get home until nearly midnight from Palo Alto, CA. Our daughter seen her specialist and had a pre scheduled MRI immediately after. Her doctor added a brain scan as well. We drove another 20 minutes to the imaging center and learned that the scans hadn’t been authorized by the insurance. I could understand the second not being yet as it was just added, but the first hadn’t been either and had been scheduled 3 weeks prior. We signed the papers to take financial responsibility still hoping that the insurance would be approved or that we could appeal if all together denied. She has to have these scans. She was taken back and came out 15-20 minutes later in her gown into the lobby. They wouldn’t proceed without a $10,000 down payment. Oh my! Then we learned none of her Stanford appointments have been covered. Nothing we could do. She went to change and we drove back home to Sacramento.

When we got home Indie short for Independence was in the same condition as when I left. I gave him more sugar water. He wouldn’t even look at food or water. His head was droopingI rested a bit, I was exhausted, I hadn’t been feeling well, I’ve been in a flare, but my arms were hurting too much, numb, losing feeling, difficult to raise, electric shocks, my chest aching. I started researching all that I could on sick puppies. I gave him a dose of RFD Liquid Wormer for puppies and dogs and comforted him. I already had it on hand. I finally fell asleep about 4:00 a.m.

When I woke, I could barely lift my head, I couldn’t feel my arms, I could barely carry myself my back was so heavy, hate is a strong word, but I really hate the word pain, it really hurt, my collarbone area, the side of my face, my lips were having spasms and sharp spikes. All in addition to my lower back and bilateral CRPS. I was diagnosed with Fibromyalgia in 2003 also, but I know that pain enough to differentiate it from CRPS and what’s going on here. For me, Fibro feels like I’ve been run over by a truck. Really deep muscle pain. Or if I haven’t worked out in a long time, and did for a day, it’s similar to the next days muscle burn pain we get from it. My arms first started doing this a couple of years ago, lasting for over 6 months straight at one point, all day and night long in the seize and release. The only way I’ve been able to describe it is that it feels like my spinal cord stimulator is in my arms for seconds at a time. Being turned on, increasing in intensity until it reaches its peak, locks my arm up, in whatever position my arms are at the time it occurs, until the buzzing/intense tingling/shocking eases down and releases. I suppose if I didn’t have an SCS, I couldn’t describe it this way and maybe because I do I had been accidentally misleading doctors in my description. The only way to describe accurately is to truthfully describe as something feels. It’s really painful. Bringing me to tears more than a few times. I really hold back crying over my CRPS pain, I hide pain fairly well, including pain behaviors and guarding, but this has caused tear drops to rain on their own accord. Automatic. It feels like a line running through the side of my head and continuing down my neck into my arms. Worse on the right,  though both are effected. And the headaches, disorientation. Phew! By the way it’s not possible for the actual stimulation from my SCS to be in my arms. Plus, back when it first occurred, I inquired to the possibility just to be sure.

Barely being able to make it down the hall because evening out my spine wasn’t an easy task, I got my coffee, and tended back to Indie. I’ve found him in the backyard twice and that scares me. I know animals often go away to pass on. He’s not an outside dog like that and because it’s not part of his normal routine it makes me uncomfortable.

I got everything ready I asked my husband to get from the store the night before. I’m bound and determined to make him better. Today is the 5th day since he’s not eaten. My husband brought back Pediatric Electrolyte, Karo Syrup, and 4 containers of chicken and rice baby food. All day long, I’m giving him a 3 ml syringe of the PediaE, 3 x each time, every hour at least. I have to pry his jaws, or attempt into the back side of his cheek between his teeth. He’s that sick. I rub the Karo on his gums to raise his blood sugar. I used a spoon to force feed him the baby food. It was messy. On the 3rd day, he finally drank water from his own bowl, but he vomited it up on my bed. Laundry! He did drink too much for not having drank in 3 days, I think. I’ve been watching for blood, there hasn’t been any that I know of. He didn’t drink any water again yesterday and he still hasn’t eaten any food and is still inactive. My 9-year-old grandson just said to me as he pet to soothe the puppy laying beside me “I miss when Indie was all hyper”.

Last evening, I added Tylenol into his daily care. I didn’t have baby Tylenol, so I put one of my Acetaminophen into a water bottle cap with a few drops of water to let dissolve. The Tylenol is a OTC 500 mg. Once liquid, I pulled approximately 150 mg of it into the syringe with the rest PediaE, shook it up, opened his mouth, and shot it down his throat and gave him 2 more 3 ml PE.

He’s so skinny.

It’s hard when you have to make choices, or rather, you don’t have any, but there are options and I’ve used my knowledge, past experiences, and the research to do as much as I can for him, as I do for the rest of my family. I hope I’m not prolonging his survival to cause him suffering but instead saving his life with all the love and compassion within me. I really don’t give up, not even on a pet.

Today I started using the syringe to get the baby food down him. Too many days have gone by. I pray I’m doing something right, he’s still hanging on.

Friday night I was diagnosed with Cervical Radiculopathy, previously diagnosed as only Paraesthesia. As long as I’m not going to drop dead of a stroke, I can figure out a way. And nope, wheels (wheelchair) are still not an option at this time. I’ve already beat being in one permanently by 10 years due to my lower extremities, not letting my upper body steal the good hard fight. Nope, not yet.

It’s taken me 2 hours to type this. A bit of a setback.

… But only a setback.

#StrongerThanPain

A Call for Action- 2016

A Call for Action 2016

By Twinkle VanFleet

disabilityIntegration

‎Since 2012, the estimated rise in addiction and opioid related abuse was an astounding 26.4 to 36 million people throughout the world. The accidental overdose of prescription related deaths were 4 times the amount of similar deaths in 1999.[1] According to the National Survey on Drugs Use and Health, 70 percent of all people who abused prescription analgesics got them from friends or relatives while 5 percent got them from a drug dealer or the internet.[2] While most of the focus has been on patients abusing their medications we must not lose sight that the majority of these patients take their medication as prescribed. The  negative innuendos influence the positive conclusion that long-term opioid treatment does in fact give quality of life to not only cancer patients, but non-cancerous chronic pain patients whose pain cannot be controlled any other way.

In an effort to deter abuse and/or misuse in patients, family, friends or associates, decrease the value in street sales, reduce the drug epidemic in certain populations, abuse deterrent formulations (ADF) are beneficial step forward in the diversion of the prescription drug issue.

OxyContin, Nucynta ER, Opana ER, Oxecta, Embeda, and Targiniq each contain abuse deterrent formulations (ADF) or tamper deterrent formulations (TDF). The most common form of abuse is by swallowing the medication. Other forms are chewing, swallowing, snorting, ingesting, inhaling, and injecting for the fast acting euphoric effect. Naloxone is a narcotic that reverses the effects of other narcotic medicines and can be used to treat drug overdose in emergency situations. Naltrexone hydrochloride blocks the effects of opioids by competitive binding (i.e., analogous to competitive inhibition of enzymes) at opioid receptors. Naloxone and Naltrexone are both opioid antagonists and each conclusively block the body from experiencing the opiate and related endorphins. This occurs by binding of the opioid receptors with higher than affinity than agonists, but do not activate the receptors.

TDFs will protect people who decide to modify the medication’s original form by removing the opioid for prompt use and abuse. Otherwise, extraction acts quickly and the time it takes to produce its effects can be immediate.[3]

ADF’s contain ingredients for safer distribution. Patients would continue to receive the management of pain and physicians would be less likely to stop providing access to pain care.

Not all patients should be diverted to ADF or TDF by their physicians. Patient Evaluation and Risk Stratification should be utilized to mitigate potential risks. Pharmacies and insurance companies should not be allowed to replace an Abuse Deterrent Formulation prescription opioid for a similar generic non ADF opioid. The prescription drug abuse issue has brought an adverse impression onto honest patients with incurable and intractable chronic pain syndromes and diseases and has left some pain professionals feeling perplexed.

With the continued development of these safer opioid medications we are contributing to the future of better health and pain care practices. Pain patients must remain a high priority in the midst of the current and ongoing concern that prescriptions will likely be misused or abused. It is imperative that patients be assessed on an individual basis and not as an assumption to the status quo.

We must find a balance that separates patients who truly need opioid medication to live productive lives and those who are abusing them. Responsible patients should not be punished in an attempt to crack down on prescription drugs and opioid abuse. Legislators, health care professionals and pharmaceutical companies must work together to stop opioid abuse while keeping the needs of chronic intractable pain patients in mind.

Patients are being labeled for their chronic pain identity. In the last year or more they have not been receiving their medication management either by their physicians, insurance or pharmacy. In one instance, I was informed that a patient with no history of abuse was being referred to what seemed a drug rehabilitation program in order to get her medication. If she did not comply, she would not receive.

Another gentleman, previously prescribed Suboxone for pain management, now cannot receive opioid managed care because the information in his Prescription Drug Monitoring Program insinuates prescription drug abuse.

Steps need to be taken to ensure that notes are added to the PDMP/CURES database on individuals. Suboxone itself is only an implication without verification for what the medication was prescribed for.

On behalf of those who need, not want, but need medication to sustain quality of life, I call upon our legislative leaders to be proactive in this area.  Help stop the abuse without penalizing those of us who are able to live at least a modicum of life due to the effectiveness of these prescription pain medications.

Think about it,  as if you’re needing to… no! really needing to, begging to, ease your Mama. Close your eyes and imagine.

I call on you to not make any compromises for a standard not yet met.

  1. America’s Addiction to Opioids: Heroin and Prescription Drug Abuse. Nora D. Volkow, M.D. May 14, 2014.

Senate Caucus on International Narcotics Control. NIH National Institute on Drug Abuse

http://www.drugabuse.gov/about-nida/legislative-activities/testimony-to-congress/2014/americas-addiction-to-opioids-heroin-prescription-drug-abuse

  1. 2. Prescription Drug Abuse. Office of National Drug Control Policy

http://www.whitehouse.gov/ondcp/prescription-drug-abuse

  1. 3. Tamper-Deterrent Opioid Formulations: Who Needs Them, and at What Cost? Robert Twillman, PhD. Pain Practitioner

http://www.aapainmanage.org/resources/articles/tamper-deterrent-opioid-formulations-who-needs-them-and-at-what-cost/

Twinkle VanFleet, Sacramento resident, pain patient, Executive Board Member and Advocacy Director for the Power of Pain Foundation.

Written Thursday, ‎December ‎04, ‎2014

Updated Wednesday October 14, 2015

Believe

(Originally Titled and published as “Belief”)

By Twinkle Wood-VanFleet

(What Heaven will look like) Photo taken by my son Kurtis Ozie (Ozra) VanFleet Sept 24, 2015. Bay Area, CA.

(What Heaven will look like) Photo taken by my son Kurtis Ozie (Ozra) VanFleet Sept 24, 2015. Bay Area, CA.

Without hope,

 

We would have nothing to pray for-

 

Without faith,

 

We would have nothing to believe in,

 

Without life and death,

 

We would have nothing to look forward to-

 

Without God,

 

We would have been nothing at all.

 

©1995-1999-2015 Twinkle Wood-Vanfleet/Golden Rainbow Poetry/all rights reserved.

Copyright laws and regulations of the united states http://www.copyright.gov/title17/

One of the few non-rhyming I’ve written. First public publication 1995, written awhile before that. x

 

wwgrctwvf_rsdadvisory

Look At Us Now

LOOK AT US NOW

By Twinkle VanFleet

E and T October 26, 2013

Him and I, October 26, 2013.

 

To love is without judgement; you know this must be true-

 

No man can put asunder, forever- only you.

 

Only rarely did we struggle- until suddenly came at once,

 

But even after the fall, our love outlasted the punch.

 

You never had to prove to me- you always tried your best,

 

Your determination would bring us up- but no one would have guessed.

 

Tremendous is my faith in you- I’ve never been unsure,

 

I’ve never doubted your abilities, because i knew who you were.

 

Endlessly praying for your spirit-during the cold hard run,

 

Prayers would soon be answered, the challenges overcome.

 

Acknowledging determined ambitions- that were virtually always missed,

 

Accomplishments defended with pride- that some said couldn’t exist.

 

Content in regards to our future, my love for you- never in doubt,

 

Lips once quivering babbled words- will dwell in endless pout.

 

True love will never make judgements, trust and faith in the solemn vow-

 

Baby, did you know we would reach it- Te Amo, look at us now.

 

©1999-2015  Twinkle Wood-VanFleet/Golden Rainbow Poetry/All rights reserved.

Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

master_slave_and_wench1

The Daniel C. Palamidessi Bridge (A Friend) West Sacramento CA with husband and oldest daughter Kharisma. 2006.

Refer to Answered Prayer (as aftermath)

To date 29 years strong.

Written 15+ years ago.

Look At Us Now was featured at the 2014 Power of Pain Foundation National P.A.I.N. Summit.

wwgrctwvf_rsdadvisory

Utopia- Sir (Saint) Thomas More

My Mama said “You really do exist!” We exist! I’m a descendant of Sir Thomas More.

“I die the king’s faithful servant, but God’s first.”

SirThomasMoreparliap1tm

Most famously known as the author of “Utopia”. Yes, that Utopia! He rather die than betray the Catholic Church. And he did. He insisted that his 3 daughters be afforded the same education as his son. He was on a quest of searching, seeking, learning and it’s said he was spiritually troubled. He’s most known for defying King Henry VIII by courage and conscious.

His oldest daughter Margaret was the first non royal Englishwoman to ever publish a work of translation. He did say his daughters would receive the same education as his son.  She did.

Sir Thomas More: Biography, Facts and Information

http://englishhistory.net/tudor/citizens/sir-thomas-more/

The Life of Sir Thomas More (1478-1535)

http://www.luminarium.org/renlit/morebio.htm

Thomas More is the villain of Wolf Hall. But is he getting a raw deal?

http://www.theguardian.com/tv-and-radio/2015/jan/18/wolf-hall-thomas-more-man-honour-fanatic-hilary-mantel

Controversial, a man who could write Utopia and become canonized by the Catholic Church as a saint in 1935. Born in Milk Street, London on February 7, 1478, son of Sir John More, a prominent judge. He studied at Oxford and pursued a career in law.

Utopia was the forerunner of the utopian literary genre.

u·to·pi·a
yo͞oˈtōpēə/
noun
an imagined place or state of things in which everything is perfect. The word was first used in the book Utopia (1516) by Sir Thomas More.

“While his work in the law courts was exemplary, his fall came quickly. He resigned in 1532, citing ill health, but the reason was probably his disapproval of Henry’s stance toward the church. He refused to attend the coronation of Anne Boleyn in June 1533, a matter which did not escape the King’s notice. In 1534 he was one of the people accused of complicity with Elizabeth Barton, the nun of Kent who opposed Henry’s break with Rome, but was not attainted due to protection from the Lords who refused to pass the bill until More’s name was off the list of names.3
      In April, 1534, More refused to swear to the Act of Succession and the Oath of Supremacy, and was committed to the Tower of London on April 17.  More was found guilty of treason and was beheaded alongside Bishop Fisher on July 6, 1535. More’s final words on the scaffold were: “The King’s good servant, but God’s First.” More was beatified in 1886 and canonized by the Catholic Church as a saint by Pope Pius XI in 1935.”  Cit- http://www.luminarium.org/renlit/morebio.htm


I held back on this one.

The bloodline though…

To think (write, create) one way, and be another so deeply. There’s no great divide. It is what it is.

And it’s great!

We are who we are, aren’t we? In judgement and criticism.

Utopia to Saint

It resonates perfectly.

My mind in all that it encompasses.

I really am all smiles.

I pray my children are too as they carry my bloodline. It’s okay to be you! It’s okay to express that which other’s do not accept, appreciate or understand. It really is okay!

That DNA!

(Yes, I know much more about him and well.., like most things… I see it your way, then I see it mine)

With love and light.. x

Sulteza

I ask of you, just one favor-

Let no one be your judge,

Or take advantage of your kindness-

Leaving you to hold a grudge.

Let no one steal from you your helpfulness-

Or rob you of your soft heart,

Or use you “til you’re bitter-

Or push you to fall apart.

Your gifts you’ve shared so freely-

Asking nothing in return,

Only hoping for that trust-

you so dearly do deserve.

Many will take for granted-

That “friend” they have to turn to,

Only once did I know an angel-

Sulteza, “It was you!”

©1999-2001-2015 Twinkle Wood-VanFleet/Golden Rainbow Poetry/All rights reserved.

 

Annie Marie and Twinkle Marie August 15, 2015

August 15, 2015

When you look to yesterday-

I hope that you have,

You’ll remember the loyalty-

What I shared back.

Especially that first time-

And without question,

You had only one place to turn-

So it was without mention.

Always be happy-

keep laughing like we did,

I hope you’ve looked over your shoulder-

To see all that we’d give.

Separately, yet together-

As we moved on to live,

We’d always find our way back-

Just like when we were kids.

©2015 Twinkle VanFleet All rights reserved.

Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

 

wwgrctwvf_rsdadvisory

Aftermath of Tragedy- God Bless the USA !

Aftermath of Tragedy

God Bless the USA !

by Twinkle Wood-VanFleet

wemustneverforget

Headlines read

“America under attack”

My body began to shiver,

The World Trade Center One was on fire

My heart began to pound,

Why, oh why..this cold malicious act.

Please God, help the People,

Another plane heading for Tower Two

Oh, I Prayed.. Lord catch Them..

They’re heading straight for You.

Tears streamed down my cheek..

Our People scattered around,

Praying for New York City

Thousands never to be found.

Let Our Country show No mercy

Terrorism is not the way…

An ultimate price shall be paid

Soon comes judgement day.

In the aftermath of tragedy

Hoping pain eases in the hearts

Of the Families left behind

If not today or tomorrow…

Then somewhere in time.

Yes, I’m still proud to be an American

Even evil couldn’t take that away

I’m as free as Our People they killed

God Bless, the USA!

© 2001-2015 Twinkle Wood-Vanfleet Golden Rainbow Poetry All rights reserved.

Unauthorized duplication is prohibited. Copyright Laws and Regulations of the United States http://www.copyright.gov/title17/

Published in both hard print and audio.

wwgrctwvf_rsdadvisory