Facebook Deactivation | RSD(S)-CRPS Advisory Info & Support Group

Posted by twinklev

By December 2nd my Facebook was deactivated. Even though I had considered it over the years, I was worried about losing my group and pages as a result, especially my RSD(S)-CRPS Advisory Info & Support Group created 13 years ago at another location. It was a spontaneous decision and one I have not regretted once.

This Group now belongs to Trudy Thomas featured Blog Talk Radio Host of The Body, Mind and Spirit Network and honorary leader of my group since it was moved to Facebook. If I choose to return it will be both Trudy’s and mine. Craig Fletcher remains an Admin/Leader and Erik and Kurtis VanFleet remain admins for the purpose of recovery. So that there are no misunderstandings Trudy is now me for the Group. Her decisions are as the current owner of the group. I have no doubts in her ability, choices, or decisions. I trust her to fulfill my vision, passion and purpose for which it was founded for.

Trudy is not available for drama, or he say’s she say’s. She would be available as able, as I was, in the event of an emergency situation such as specific breaking of the rules that were established long ago, or those being malicious or instigating toward one another. I may be involved from the background with updates from Trudy though I will not require them.

I’ll always want to know if all is okay. That’s because I care a bit too much and to my own detriment. Being an empath/sensitive only causes me to feel your pain, feelings, thoughts, dislikes, and emotions I rather not feel of you because then I’m over flowing with mine and yours, too.

Trudy is learning to live again and without her husband Mel of over 40 years. It’s only been a month since she lost him to inoperable cancer which had only been discovered 4 months before.

About 2 months ago I had posted on Facebook about Trudy, her situation, about someone we all knew (most of us) and it was a long post but I hadn’t shared who she was. This post was taken so far out of context from a few people believing I was talking about myself that I was dumbfounded. This wasn’t the only post misunderstood. I’ve posted random comments about family, life. I’ve shared meme’s, music, lyrics, poetry that of other’s and some of my own. I’ve shared lines or stanza’s in pieces and parts. Even those are taken adverse. I’m well aware that once it’s on the internet it’s always on the internet. I’m aware that if we make a post that we can’t expect others to comment if we put ourselves out there. Of course. I would never hop onto someone else’s page to scold them or entice an argument. I have however replied on my own page when someone bounces onto mine.

My point is that not everything is internet or online related, and sometimes things are. In this post it was online related, yet taken as something else, when an offline related post is assumed to be about online people. The perception is so often opposite of the intent. Left to interpretation by tone of type. The assumed tone of voice or mannerisms in the typed form of communication.

Please be mindful of Trudy’s loss. My heart continues to break for her.

Facebook is nothing but a trigger for me in my own healing and progress.

The Edge. There is no honest way to explain it because the only people who really know where it is are the ones who have gone over.
~Hunter S. Thompson

I’m still doing well since completing the Gohl Program on the 28th of October and will continue to provide progress updates on Manual Ligament Therapy (MLT) as able.

I’m still on Twitter @rsdcrpsfire and my other social media accounts are in tact at this time. I’m still an avid researcher and as hungry to learn as I’ve ever been. I’m also looking for work to attempt to provide for my husband and I.

Since resigning from iPain I have not joined any other organization, nor will I. I’ll share and support as I always had.

I made it to the California State Capital to support Mr. Nate Torgerson, Chief Engineer, Medtronic Stimulation Pain Therapies on December 4th at the California International Marathon where I was right there near the finish line to support him as he crossed it.

medtronic-nate-torgerson-crosses-the-finish-line-california-international-marathon-december-4-2016-photo-by-twinkle-vanfleet-jpg-large

Medtronic Chief Engineer, Pain Stimulation Therapies Nate Torgerson crosses the finish line at the California International Marathon in Sacramento. Photo credit: Twinkle VanFleet

I had the honor and privilege of meeting him later that evening for dinner.

Great conversation, sharing, learning, and food at Zocalo’s in downtown Sacramento. He asked me about my experience winning the Live On Give On Bakken award, and I told him what a surprise it had been to learn that I had and the honor it was to receive it from the hands of Dr. Earl Bakken himself. Dr. Bakken is the co founder of Medtronic. Forever grateful to be chosen as 1 of 12 recognized internationally and being 1 of 2 from the United States. Twinkle VanFleet, Sacramento California.

Twinkle VanFleet, Sacramento, CA, LiveOnGiveOn.org recipient. Original Press Release Photo.

Another honor was being contacted by Mr. Pat Anson of the Pain News Network to consider offering comment on an upcoming article. I accepted.

Opioid Pain Meds Rarely Involved in Suicide Attempts
December 05, 2016 By Pat Anson, Editor

I’ll keep sharing my story, what happened, how it happened, when it happened and anything else I can to support those lost by pain related suicide. As well as those survivors who can never go back to the moment before they attempted to take their own lives. I don’t get to go back and pray for an option, help, that wasn’t there but I can go forward understanding why they did it, what the breaking point was, how severe physical pain was to go against all they believed in just to be free from pain and suffering.

My casting calls are still booming with possibilities since I updated a couple of weeks ago. For now, I’m deciding, and brushing up on the various characters I can play.

Offline, I have an amazing reputation, respected in advocacy, legislation, held in wonderful regard by those that matter, including those in authority, business, politics, and healthcare even when in disagreement over a bill, debate or topic. Online, unless we already know each other, or have met in person it will rarely be the same because what you see isn’t always what you get and what you get isn’t what you’ve already given.

It’s all a stage.

Be good to one another.

~Twinkle VanFleet

#StrongerThanPain

Live On. Give On | 2015 Bakken Invitation Honoree | Pre-Review

Posted by twinklev

Week of January 11, 2016 (never shared)

As I get ready to fly to Kona, Hawaii for the Medtronic Bakken Awards, I’m trying to help myself overcome challenges related to traveling, weight bearing, pulmonary and sleep disorder issues. My breathing has been unstable this week, my head, neck, arms, and even female troubles have poked me in the side.

I had my appointment with my PMD yesterday to ask for considerations that might help me through as it’s becoming harder and harder to stay up on my own and maintain pain levels. I already put in for ADA assistance during the travel and at the hotel. Yet, I won’t allow myself to be confined to a wheelchair while there, so I’m carefully pacing myself so that my legs carry me. My Medtronic Spinal Cord Stimulator has been my pill for 10 years. I’ll be able to adjust for optimum relief, but to do so also means that I have to either not be on my legs/feet at that time or not raising my settings for added comfort. I learned a long time ago how to get the best out of it for me. I’ve also learned that there are times I have to trade relief for walking and I can’t always have both at the same time. I can set my stim to numb me, but because I am one of the lucky ones whose stimulation does reach the toes, increasing this setting can knock me off my legs. I reserve this for non weight bearing pain relief. This is not an adverse effect, but a plus and benefit that has to be noted and chosen to best fit my time and place.

My Auto Servo Ventilator is too big and quite heavy to carry, so I may have to go without it. Still working on that. Otherwise I’d be traveling with 2 medical devices and have little room for anything else.

At this time next week, we’ll have already landed and be apart of the meet and greet with each honoree, Medtronic and so many others. I’m looking forward to representing Power of Pain Foundation as the new International Pain Foundation, myself as honoree, each honoree for what they have also accomplished and given, advocacy, volunteering, my family, my closest friends, and Dr. Earl Bakken and Medtronic Philanthropy.

There are a few wonderful people and establishments I want to say thank you to for being apart of this with me.

The International Pain Foundation (IPF) #iPain – Previously known as the Power of Pain Foundation. http://powerofpain.org/

Sacramento Pain Clinic – Dr. Michael Levin – Since 2004. Not just a Pain Management Doctor, but a patient advocate going above and beyond his own job for his patients.)

http://www.sacpainclinic.com/sacpain.php

Jacob Chopourian, Therapy Representative, Pain Therapist, Medtronic Inc Neuromodulation, Sacramento, California. www.medtronic.com

(Jacob has been part of my surgical team. He’s also adjusted me as needed. When I had my 9 year battery replaced I donated back to Medtronic my carrying bag, handheld stim (my stim) case, charger, hip straps, antenna, and manuals so that someone who needed these items in whole or in part could have them. Jacob came to my home to pick it up. Amazing man.)

Katie Tamez, Clinical Specialist, Pain Therapy, Medtronic Inc
Neuromodulation. Sacramento, California. www.medtronic.com

(Katie has worked to fine tune me, too.) I’ve no longer needed the 3 programs I started with many years ago, sitting, walking, sleeping. I use a single program with pulse. Wonderful lady.)

Compass Center for Functional Restoration – (Dr. Michael Levin MD) Rick Wurster MSG, MPT, BCIAC http://www.sacpainclinic.com/compass.php

(The center that taught me all there is about pain, physically, emotionally and psychologically. How to live with it using the mind, spirit and body to overcome flareups and maintain a modicum of sanity. Because of them I’ve been able to teach others what they taught me and find some joy and laughter in pain.)

Western Dental – Elk Grove Florin Road, Elk Grove, California

Dr. Tooloei, Staff.

You did great. Thank you for trying before I left for Hawaii. Trying meant enough to me.

Trudy Thomas, Featured BlogTalkRadio Host of the Living with HOPE Radio show on the Body, Mind and Spirit Network.

http://www.blogtalkradio.com/thebodymindandspiritnetwork
So proud of you and all you’ve given, selflessly. Happy that we have each other and our friendship survives the things we can’t do anymore.
Honored to have been both your co-host and guest speaker and warmed that you will always be family. Thank you for being all that I can count on as honorific leader/admin of my group. I love you!

Roy, MD Junction – http://www.MDJunction.com (Honored to have lead your Reflex Sympathetic Dystrophy Support Group for years.

http://www.mdjunction.com/reflex-sympathetic-dystrophy

Glad to have lead the ADHD support group on behalf of the children and parents who needed someone to oversee it. Pleased to still be a Senior Member and
MDJ Advocate. Love you all!)

Barby Ingle, www.BarbyIngle.com
(Together we can! Together we will! And together we are! Through MDJ and Trudy we found each other. I’ll forever remember the ones who cherished me for cherishing them. All 3 of you! Onward I go with #iPain. I love you!)

My Mom and Dad(s) (I know my dad is watching over. Gone since I was 22. My mom and dad was married 25 years when I closed his eyes. My mom and dad have been married 20 years and dated prior to that. So Mr. Don Tresca has been my father just as long as my birth dad was. I pray I’ve honored them all evenly and fairly as their daughter. I love you!)

Erik, Kharisma, Rikki, Kurtis and De’Mantai (my 5 lights). (Awards and recognition is great but not if they are seemingly meaningless to those that it should have mattered most, too.
There’s so much I’ve advocated for on your behalf’s that you’ve never even seen. I know that it all gets stale at some point but if you only knew it was never more for someone else than it was for you. Seek and you shall find. love you! Ohana.)

I’m so glad Daddy saw, felt, and knows now. Sometimes it takes a miracle and that miracle came. It’s all good. Ask him ~winks

Annie-Marie Garcia (30 years! Time in between where we had gaps because life does that with work and loss. We don’t want to add burden to those we love or stomp on someone else’s, okay. That’s what we tell ourselves at least. I’m glad I got you now in the illness you should have never ended up with. I wish I was there when you were first going through it and if only I had known. Lets never let anything separate us again. For you and I, we have something special, we can see each other every day, or have weeks, months or years go by, but we always know that when it comes down to it, we are the ride or die. I love you!)

Maryann Kupidlowski Stafford (My sister since our babies were babies. Young teen daughters. If we weren’t there together we would have never met. Your curiosity, my extended learning, teaching. We both did, and we both gave, mine was just for extending natural order A decade? 12, 13. Time flies. Here we are moving forward in light, love and tomorrow. I love you!)

PK Saint-Amour (Bruja, pain, strength and the sight. Light and the “F’off. I so love you for being courageous in all of it. I’m so glad that you’re my sister in knowledge and fight. I love you!) https://www.facebook.com/groups/InvisibleWarriors/

Eileen McCready (A long time now too, background, foreground, compassion and understanding beyond pain. Sister of mine, always. I love you!)

Saskia Hubelmeijer (My international sister who does all she can in the Netherlands despite pain and hardship, and for America, too. Who’s assisted in leading my group since 2011, as formal admin and informal I love you!)

Billy Rose (Thank you brother for leading light and love above pain and hurt for all people. You demonstrate what the world needs more of and you are providing the change needed to overcome it all again) I love you!

The Council (We are who we are and one day when the earth is over, or death takes us, we’ll still be us, together, teaching, giving, inspiring, awakening those asleep all in their own time) I love you all. http://www.councilofenlightened.org/

The Sacramento News & Review (For featuring my voice and passion over 20 years ago) November 17, 1994, Speaking Out Edition) https://rsdadvisory.com/2015/07/24/sacramento-news-review-november-17-1994-speaking-out/

https://www.newsreview.com/sacramento/home

ECV Chapter 3 (Clampers/widders) E. Clampus Vitus was established in 1849.

http://ecv3.net/ http://www.ecvgazette.com/

(In memory of IRJR http://www.irjr.com/, a great man, friend, Clamper, who many years ago when founded Widders Web honored me with his chat program instead of the one I was using for us, I used his to then honor what he started years previous to that. http://www.irjr.com/widderschat/ While the pages are currently not found and the chat needs updating, I wanted to thank him again. Mr. IRJR is no longer with us.

SPPAN (State Pain Policy Advocacy Network) (I hope we continue on)

RSD(S)-CRPS Advisories

(Founded by me, for you)

—————

Refer to December 27, 2015

https://rsdadvisory.com/2015/12/23/twinkle-vanfleet-2015-honoree/

To be continued!…

The best is yet to come.

Twinkle VanFleet, 2015 Bakken Invitaton Honoree, Sacramento CA, #iPain, with Dr. Earl Bakken Medtronic Co-Founder, Kona Hawaii. Awards reception. January 16, 2016.

http://bakkeninvitation.medtronic.com/honorees-winners/

http://bakkeninvitation.medtronic.com/honorees-winners/2015/twinkle-van-fleet/index.htm

http://newsroom.medtronic.com/phoenix.zhtml?c=251324&p=irol-newsArticle&ID=1822170

http://newsroom.medtronic.com/phoenix.zhtml?c=251324&p=irol-newsArticle&ID=2122319

http://www.nasdaq.com/press-release/the-medtronic-bakken-invitation-award-honors-12-patients-from-around-the-world-for-giving-back-20151214-00566.

http://www.otcmarkets.com/stock/MDT/news

Living with HOPE Radio Show: Re-Airs Live- NERVEmber 19, 2015

Posted by twinklev

The Living with HOPE Radio Show with Host Trudy Thomas will re air live NERVEmber 19th, 2015 on the Body, Mind, and Spirit Network. Due to health reasons she took leave in January and has been working toward returning.

I’ll be re-joining Trudy as co-host each Thursday at 2:30 p.m PST/5:30 p.m EST with a 30 minute guest speaker, or to review, or to discuss current affairs. The chat room will be available for your combination of listening and chatting pleasure. The call in number for the show is (929) 477-3203.

Please stay on the line to listen live or press 1 to speak to the host.

Living With Hope: Guest Twinkle Van Fleet

Together, we’ll bring you a diverse array of treatment options, healing essentials, technology, inspiration, activities, and living with hope.

Since 2007, Trudy’s mission has been to promote awareness for the millions of people who struggle with chronic or intractable pain. To let people know that they are not alone in their journey and that there is life after diagnosis. Trudy discusses various therapies and the emotional struggles that can arise with a chronic incurable condition such as RSD/CRPS and coming out on the other side. She strives to empower, inform and educate.

If you have a topic of interest or would like to request guest consideration and have any questions, Please, contact Trudy at: goldfield_nv@hotmail.com

With “Topic of interest” in the subject line to propose a topic. “Guest speaker” to be considered as a guest and “Question” to ask your question. Please provide your proposal or question for either. This helps filter email and requests to better serve you.

Hope to see you there!

Pain Awareness Month 2015 – Feature 2 – Trudy Thomas, Living with HOPE Radio Show

Posted by twinklev

Living with HOPE began in 2007 under its original title Living with RSD. It was Trudy Thomas’ hope to learn more information about her own health issue, the debilitating and painful illness RSD/Reflex Sympathetic Dystrophy and with that a show was born. Bringing both traditional Western Medical Practices and Complementary and Alternative Medicine (CAM) practitioners with expertise in prevention to cutting edge technology.

Trudy Thomas is returning to radio!

Stay tuned!

Trudy empowered, informed and educated her listeners with information that wasn’t always readily available in a patient’s local area. Through the power of the internet she had the ability to bring you some of the most knowledgeable physicians, researchers, and advocates in the world.

Guests/Interviewee’s have included: Physicians, Counselors, Spiritual Healers, Psychologists, Pain Management Specialists, Alternative and Homeopathic Healer’s, Energy Healer’s, Medical Authors, Biographers, Researchers, Reiki Master’s, Herbalists, Chinese Medicine Practitioners, Clinical Trial Physicians, Patients, Patient Authors, many more.

Some Topics have included: Meditation, Biofeedback, Guided imagery, Relaxation techniques, Breathing exercises, Holistic healing, Energy healing, Coping strategies, Distraction, Depression, Spinal Cord Stimulation (SCS), Pain Management, Medication management, Ketamine, Calmare (Scrambler Therapy), Mirror therapy (Mirror Box), DMSO, Low Light Laser Treatment Therapy (LLLT), Functional Restoration, IVIG, Neuropathies, RSD/CRPS, Herbal Remedies, Chinese Medicine, Neuro Inflammatory Disease (NID) and much more.

Trudy broadcasted live from PAINWeek 2013, September 5th and 6th. Hosting the Featured Living with HOPE Radio Show with Co Host Barby Ingle of the Power of Pain Foundation. Together they interviewed 4 doctors each day with varying backgrounds in pain and treatments.

Trudy’s network was the original hot spot for the Burning for a Cure show with Barby Ingle.

Trudy was the Nevada Ambassador for the Power of Pain Foundation until 2014.

She is the 2012 recipient of the Melanie McDowell Chronic Pain Awareness and Advocacy Award.
http://powerofpain.org/mcdowell-advocacy-award/

Trudy’s live shows ceased approximately 9 months ago. The archives are available for you.

Her Living with HOPE Show on the Body, Mind and Spirit Network became a featured Blog Talk Radio Broadcast in February of 2013 and retains that featured status today. Her flavorful interviews, upbeat personality, and casual atmosphere gave us a mixture of guest education, information and awareness, co hosting fun, thousands of listeners and our body, mind and spirits were left fulfilled with either something learned, something gained or something to look forward to. Hope.

Living with Hope
Body, Mind and Spirit Network

http://www.blogtalkradio.com/thebodymindandspiritnetwork

Living with Hope
Search Results- Google

https://www.google.com/#q=living+with+hope+blogtalkradio

Living with RSD
Search Results- Google

https://www.google.com/#q=living+with+rsd+blogtalkradio

Living with Hope was originally known as Living with RSD

Trudy can be contacted at: goldfield_nv@hotmail.com.

Living With Hope: Patient Spotlights

Posted by twinklev

Featured Blog Talk Radio Host Trudy Thomas puts the Spotlight on Youth related pain and diseases. Each Monday at 4:00 p.m Pacific time/7:00 p.m Eastern.

Patient Spotlight Night to spotlight youth in pain stories of the @powerofpain youth fundraisers –

Tune in to hear about 4 different diseases and how the kids and the families are working to overcome the challenges.

Living with Hope Radio Show on the Body, Mind and Spirit Network

Listen to: Living with Hope Patient Spotlights Monday July 21, 2014

To join the shows, Call (347) 884-9691 Stay on the line to listen, press 1 to speak to the Host or Guests. You can also follow the link above and log in from your computer, use a headset and join in the chat room.

Trudy has been the Nevada Ambassador for the Power of Pain Foundation for years now.

She started her show in 2007. It has excelled to it’s ‘featured” status on Blog Talk Radio.

The Power of Pain Foundation‘s Patient Fundraiser Program for Youth offers front page exposure on POPF’s main page for those fundraising for medical related issues, treatment, equipment, life saving measures, and more for those between 0-20 years of age.

Power of Pain and Living with Hope offers parents or the youth themselves a chance to tell their stories, teaching us about illnesses we may not otherwise know of, raise awareness in new areas, learn more about illnesses that we do, and show these parents, children, pre teens and teens, we care.

If you know someone who qualifies, please contact us

POPF National Youth Ambassador, Kurtis VanFleet Kurtis@powerofpain.org

Feel welcome to contact me also.

Trudy is also live Friday morning’s at 9:00 a.m PST. Each show is pain related, whether holistic or conventional. There is always something to learn. Episodes are archived, available to listen to and ready for download.

Broadcasting Live From PAINWeek 2013 Living With HOPE

Posted by twinklev

Broadcasting live from PAINWeek 2013 Host Trudy Thomas of the Featured Living with HOPE Radio Show will be on the air with Co Host Barby Ingle of the Power of Pain Foundation and together they will be interviewing 4 doctors a day with varying backgrounds in pain and treatments that they each have to offer. Each doctor will get 15 mins of air time.

Trudy and Barby will be doing a 1 hour broadcast live from PAINWeek on Sept. 5^th and 6^th.

Be sure to stop by the chat room or phone in to listen and find out which doctors will be featured.

http://www.blogtalkradio.com/thebodymindandspiritnetwork

Call in to speak with the host and guest speakers (347) 884-9691

Are you living with a chronic illness? Chronic Pain?

Depression? You are not alone. Join us to meet some amazing guests who have walked the same path and come out on the other side.

This show delivers hope, practical advice, ways to find your own path and would like to hear from you about your journey.

A New Beginning: My Life with RSD

Posted by twinklev

A New Beginning: My Life with RSD.

The above blog belongs to featured Blog Talk Radio Host Trudy Thomas.

The Living with HOPE Radio Show is Sponsored by the Power of Pain Foundation.

Living with HOPE began in 2007 under the original title Living with RSD. It was Trudy’s hope to learn more information about her own health issue, the debilitating and painful illness RSD/Reflex Sympathetic Dystrophy and with that a show was born. Trudy interviews doctors, therapists, caregivers, and patients; both traditional and alternative practitioners with expertise that runs from prevention to cutting edge technology.

Trudy empowers, informs and educates her listeners with information that may not be readily available in their local area. Through the power of the internet she has the ability to communicate with and speak to some of the most knowledgeable doctors and researchers in the world.

Some Topics have included: Meditation, Biofeedback, Guided imagery, Relaxation techniques, Breathing exercises, Holistic healing, Coping strategies, Distraction, Depression, Spinal Cord Stimulation (SCS), Pain Management, Medications, Chronic Pain Treatments, Ketamine, Calmare (Scrambler Therapy), Cortical Integrative Therapy (CIT®), Mirror therapy (Mirror Box), DMSO, Low Light Laser Treatment Therapy (LLLT), Functional Restoration, IVIG, Neuropathies, RSD/CRPS, Neuro Inflammatory Disease (NID) and much more.

For more information on how you can listen or even call in please click HERE.

—————————————————

Listeners are encouraged to call in to ask questions of the guests during the show 1-347-884-9691, and if you miss the show you can listen later by clicking on the play button or downloading the shows archive. If you are on the go, you can call into the show through your home phone or cell phone at the above number and listen live. To speak with the host or ask the guest a question press 1, you can still listen to the show while waiting to go on the air, don’t hang up! Your questions and comments are important! A chat room is also available during the live show.

Living With Hope is broadcast live on Monday’s 4:00 p.m pacific and Friday’s 9:oo a.m pacific.

You can post your questions in the chat room to be answered on air. If the time is not convenient to stop by the live shows, you can listen to the archives at any time on the radio page.

Savy Seniors, Trudy’s newest show is live on Wednesdays 3:00 p.m PST. with co-host, Sharon Rowell covering all the latest news about health, medicine, safety, care taking and programs that are available to help seniors live a fun, productive and long life.

And, for fun of course Trudy does a Saturday show, 3:00 p.m PST, with readings from spirit given by Seers of the Soul and lots of fun music from the 50′s-80′s. Oldies but goodies.

If you are interested in being a guest on any of these shows, please email Trudy at goldfield_nv@hotmail.com.

Cortical Integrative Therapy with Dr. Victor M. Pedro on Living with HOPE Radio Show with Featured Host Trudy Thomas

Posted by twinklev

The following information has been taken from notes as a listener to the show and research, nearly all the words themselves belong to Dr. Victor M. Pedro. I take no credit for these. My goal is to get this non invasive seemingly promising information out so that other’s may find it a hopeful treatment program in their journey with CRPS/RSD, Chronic Pain, TBI’s and other illnesses and conditions.

Yesterday on the Living with Hope Radio show with Featured Host Trudy Thomas and Co Host Barby Ingle . Dr. Victor M. Pedro discussed Cortical Integrative Therapy (CIT®) a technique he uses and developed.

The entire show can be listened to here: http://www.blogtalkradio.com/thebodymindandspiritnetwork/2013/05/29/living-with-hope-with-host-trudy-thomas The Living with HOPE Show is Sponsored by the Power of Pain Foundation.

Dr. Victor M. Pedro’s career began as a Chiropractor and continued on with a Post Graduate in Functional Neurology. He says ” it was a very good starting point for brain function and innovative treatments that could begin to make a difference in peoples lives. He was fortunate enough to receive grant funding from the Rhode Island Legislature which permitted him to do a variety of studies and to study with significant people to get a more in depth and cutting edge picture of what was available in Neurology and how the brain functioned.

Trudy asked ” Does this therapy work for other conditions other than RSD? Dr. Pedro stated Yes! What he wanted his contribution to be is the person credited with creating an algorithm for understanding where in the nervous system to intervene.”

There are plenty of resources that will explain what a brain dysfunction is or pathology is, disease process or diagnostic procedure to figure out what folks are complaining about.

The rehabilitative model is where the challenge for the future lies.

Barby ask’s “Does every patient have a different algorithm? Or do you find they are similar with the same condition? The doctors answer’s ” By algorithm I mean a process we go about to evaluate what the affliction is or what’s wrong with the patient.”

Reflex Sympathetic Dystrophy or Dysautonomias in general are a condition Dr. Pedro has a particular interest in. With this condition he tries to find out how the autonomic system is dis-regulated or not working well and then his team tries to decipher in the patients does this person have Reflex Sympathetic Dystrophy (RSD) because the Sympathetic Nervous System is too high and not being inhibited or is it the Parasympathetic System that’s undergone demise and not effective.

“The treatment is actually different and makes all the difference in the world to the patients outcome, Dr. Pedro say’s.”

Barby ask’s ” Similar to Traumatic Brain Injuries (TBI’s) Would there be a different protocol for that?

Dr. Pedro answer’s “A different protocol in terms of how we’re going to add on different diagnostic pieces to the evaluation. Then we begin to identify precisely which modalities the patient needs. A TBI patient may have a similar pathology of an RSD/CRPS patient, may have similar findings, however we may go about the treatment process slightly differently.”

One of Dr. Pedro’s patients and a good friend of Barby Ingle’s just did an interview which will be released in this Saturday’s (June 1, 2013) edition of Pain Pathway’s Magazine. Please look for it!

Physical, emotional and nutritional needs are also taught this during treatment.

The autonomic nervous system delivers fuel to the body and brain. The autonomic nervous system is the automatic part of the nervous system that controls your heart rate, size of arteries delivering blood or fuel to the body and into our brain itself. This part of the body can be evaluated through a series of tests.

Someone with a compromise in their sympathetic nervous system may not have as much profusion as should be present. The long term consequences are considered regarding how this is effecting the tissue and that’s why the trophic changes present in this pathology.

Barby ask’s “Is maintenance treatment required or is this a one time process?”

Dr. Pedro states “The evaluation process takes 2 to 4 hours depending on the patient.” Based not only on tests, but the patients ability to participate.”

At the end of the evaluation we attempt to draw for them what we believe is wrong in the nervous system and make an educated hypothesis as to where the dysfunction is and what can potentially be done to correct it. A series of windows of observation, sympathetic, autonomic windows of observation more appropriately. We identify these at the end of the initial observation and we give the patient a treatment to see if their pain level comes down significantly or at least appreciatively.

That signals to us they are a good candidate for our program.

Dr. Victor M. Pedro is founder and president of Rhode Island Integrated Medicine, located in Cranston, RI. An accomplished, Board Certified Chiropractic Neurologist, Dr. Pedro pioneered the development of Cortical Integrative Therapy (CIT®)—a breakthrough, research-based treatment designed to address brain and neurological dysfunction in both children and adults.

After remarkable success using CIT® to treat school-age students diagnosed with speech, attention and learning disabilities, Dr. Pedro applied the treatment for use in patients with Reflex Sympathetic Dystrophy or CRPS, dysautonomias, and traumatic brain injury (TBI).

Over the years, Dr. Pedro has lectured extensively on CIT® as a non-invasive, cost-effective treatment for TBI, pain syndromes, dysautonomias, and other brain-related disorders.

Cortical Integrative Therapy (CIT®) has been successful in treating a wide range of painful and debilitating conditions including: ADD/ADHD; apraxia; ataxia; chronic pain; dystonia; dysautonomias; hypotonia; memory difficulties; movement disorders; Parkinson’s disease; Reflex Sympathetic Dystrophy (RSD)/Chronic Regional Pain Syndrome (CRPS); RLS; sciatica; traumatic brain injury; tremors; and vertigo, balance, and gait problems. ©Rhode Island Integrated Medicine

Other keywords in the interview- Inhibitory system, Renshaw cells, Autonomics, Small diameter fibers, Dysautonomias, Limbic system, Antonio DeMazio

http://corticalintegrativetherapy.com/ Cortical Integrative Therapy Rhode Island Integrated Medicine- The Brain Rehabilitative Specialists

http://corticalintegrativetherapy.com/blog/ NBC 10 Health Check Special Report: TBI & CIT® March 04, 2013

~Twinkle VanFleet, California State Ambassador Power of Pain Foundation

If I have mis stated any facts or quotes please contact me at: caambassador@powerofpain.org I will make any corrections immediately. Thank you!

A Spiritual Reading by Joshua John Psychic Medium on Spirit Secrets with Host Trudy Thomas (Includes the Poem- My Dearest Daddy)

Posted by twinklev

Yesterday on Spirit Secrets a show on the Body, Mind and Spirit Network with Featured Blog Talk Radio Host Trudy Thomas I decided to call in and ask a question about my father who passed away in my early 20’s.

You can listen to the entire show at the following link: http://www.blogtalkradio.com/thebodymindandspiritnetwork/2013/05/25/spirit-secrets

Do to the high volume of calls Joshua will be coming back on the show at a later date and will also be appearing in the future on the Living with HOPE Show.

You can listen to my question and Joshua’s reading for me between: 79.09 – 82.06 of the show linked above.

You can listen via a player or download it for your convenience or right from the site itself.

I have to give Joshua validation for he read me without knowing me, he was able to feel and connect. I gave him no information, just my question, this story isn’t readily available to be found, no one knew I was calling. I never gave my age at the time of my dads passing. It was all spot on. Maybe it doesn’t work for everyone, but it did for me. I hope it does for you also.

My question to Joshua was if he could feel any messages my father might have for me. His feelings were amazing. You can here my voice break on the call or recording. Many of the things Joshua mentioned to me was told to me by my dad on his death bed. And the rest gave me a sense of freedom finally. As you listen you will understand what Joshua meant about my dads chest. The cancer had eaten away a couple of his ribs and the others busted through his posterior chest wall. He was in agonizing pain. He was carried in to a hospital in Chico Ca with part of his body paralyzed and never came out except to be transported to my home where I lived with my husband and 2 daughters of 2.5 years and 3.5 years. I had been married nearly 4 years by then. Our living room looked like a hospital room. Hospital bed, trapeze, hoist, potty chair, you name it it was there. I changed his diapers, cared for him and combed his hair often. He liked his hair combed. He had gone through radiation in the hospital but it was too late, he was inoperable. He came home to me to die. From the day he walked into that hospital to the day I closed his eyes was 5 weeks. So much was un diagnosed. I became his advocate at 22, I fought for his Social Security but he was denied. He received his first check 2 weeks after he passed. It was a hard long fight. I lost twin babies of my own that previous year 1990. I lost my dad September of 1991 to inoperable lung cancer.

I kept a in depth journal of the time I spent caring for my dad and my mom as she came to live with us too. But I was the one who had to be strong and take care of everyone else. I really have not grieved for his loss yet. He was a long haul truck driver most of my life and that’s where I imagine him to be. He’s on the road that’s why he’s not here. I haven’t gone back to those journals too much contained within them, I wrote several times a day, went to hospice and stopped going after a time being. When I closed his eyes I had to had to remove his clenched hands from the hospital bed rails. I criss crossed his arms over his chest and laid him to rest and whispered in his ear how much I loved him and would see him again. It was early in the morning, my husband had just left for work, my youngest daughter came in to get me, I knew something was wrong, I think she saw him passing and he either waved her away or waved his hands to go get me either way I sensed it and went to him right away, he was passing, not cold yet. He was a no-code. He sternly made me promise and he put this on me and me alone to not call 911 for they would only revive him to die again with tubes in him. The hardest decision I ever had to make. But I promised! I kept that promise and let him go. Other than his hands bracing himself for that ride to heaven, he went peacefully. And then I walked in circles, I tried not to panic, I woke my mother and family calls were made. The coroner came later to pick him up. He did not need an autopsy. My husband, his father and I made the funeral arrangements. My husband arranged my dad his 21 gun military salute.

I’m going to leave this story here. It’s too long to continue.

I’m including a poem at the bottom I wrote for my dad and read at his funeral, first published at Memorial Lawn and then various other places.

You can also listen to the Living with HOPE Show and other Shows on the Body, Mind and Spirit Network here: http://blogtalkradio.com/thebodymindandspiritnetwork

The Living with HOPE Radio Show is sponsored by the Power of Pain Foundation.

Joshua-John is a 21 year old Psychic Medium who communicates with crossed over loved ones, angels and Spirit guides. He currently studies with Lisa Williams and Pat Longo (Theresa Caputo’s teacher).

Josh has come through an incredibly difficult first 19 years, and demonstrates an amazingly positive attitude and a wisdom and maturity far exceeding his age.

Joshua uses empathy to receive information from those he is reading for, and from the spirit world. He communicates and interprets feelings, pictures, letters numbers, and direct communication. He brings messages from the heart – intended to help heal, direct and guide you on your journey.

If you have questions about love, health, career, spirituality or loved ones, a reading by Joshua John will most likely amaze you.

To learn more about Joshua or to book a private reading with him please visit his website:

www.askjj.org

https://www.facebook.com/jjmedium

MY DEAREST DADDY

This page is lovingly dedicated to the memory of Lauren E. Wood~ 06-06-38 – 09-07-91

ON SEPTEMBER SEVENTH 1991,

I CLOSED YOUR EYES-

ALL I CAN SAY IS I LOVE YOU,

I CAN’T SAY GOODBYES.

I WISH YOU WOULDNT HAVE LEFT US,

I PRAYED YOU WOULDNT GO AWAY-

I WOULD HAVE TAKEN YOUR PAIN IN A MINUTE,

IF YOU COULD HAVE JUST BEEN OKAY.

JESUS CALLED ON YOU FOR A REASON,

ONE WE CAN’T YET UNDERSTAND-

HE TOOK YOUR PAIN AWAY FOREVER-

HE PUT YOU IN GODS HANDS.

NOW YOU CAN WALK DADDY

AND RUN AS FAST AS YOU CAN-

YOUR BODY CAN’T HURT ANYMORE-

YOU’RE STILL 100% A MAN.

NO ONE CAN SAY ANY DIFFERENT,

SOME WERE ALSO WRONG,

BUT THEY ARE THE ONES TO BE JUDGED-

WHEN THAT DAY COMES ALONG.

I’M PROUD OF YOU DADDY,

YOU ALWAYS DID YOUR BEST,

OUR MEMORIESS ARE FOREVER-

NOW WE LAY YOU DOWN TO REST.

SO DADDY WALK WITH MAMA,

YOUR BEAUTIFUL WIFE-

SHE’S LOVING YOU TO PIECES POKEY,

FOR THE REST OF HER LIFE.

EVERYTHING YOU TAUGHT ME,

I’LL KEEP DOING IT RIGHT,

LET ME ALWAYS BE THE TWINKLE-

IN MY DADDYS EYES.

LETS CLOSE OUR OWN EYES AND MAKE A WISH,

FOR YOUR ETERNAL LIFE I CLOSE WITH THIS-

IMMORTALITY IS A TOTALITY OF TIME,

WITH NO BEGINNING OR END…

HEAVENS LIFE IS NEVER ENDING,

p.s Sorry for the caps. My mom is now happily remarried. My mom and dad shared 25 years together before his passing.

~Twinkle VanFleet

Living with HOPE Radio Show Now A “Featured Host” On BlogTalk

Posted by twinklev

I am absolutely thrilled to announce that The Body, Mind and Spirit Network is now a Featured Host on Blogtalk Radio! This includes the popular Living with HOPE Radio Show sponsored by the Power of Pain Foundation.

Living with HOPE began in 2007 under the original title Living with RSD. It was Trudy’s hope to learn more information about her own health issue, the debilitating and painful illness RSD/Reflex Sympathetic Dystrophy and with that a show was born. She interviews doctors, therapists and patients; both traditional and more recently alternative practitioners with expertise that runs from prevention to cutting edge technology.

Trudy strives to empower, inform and educate her listeners with information that may not be readily available in their local area. Through the power of the internet she has the ability to communicate with and speak to some of the most knowledgeable doctors and researchers in the world.

Guests/Interviewee’s have included: Physicians, Counselors, Spiritual Healers, Psychologists, Alternative and Homeopathic Healers, Medical Authors, Biographers Researchers, Clinical Trial Physicians, and many more.

Some Topics have included: Meditation, Biofeedback, Guided imagery, Relaxation techniques, Breathing exercises, Holistic healing, Coping strategies, Distraction, Depression, Spinal Cord Stimulation (SCS), Pain Management, Medications, Chronic Pain Treatments, Ketamine, Calmare (Scrambler Therapy), Mirror therapy (Mirror Box), DMSO, Low Light Laser Treatment Therapy (LLLT), Functional Restoration, IVIG, Neuropathies, RSD/CRPS, Neuro Inflammatory Disease (NID) and much more.

Living With Hope is broadcast live on Monday’s 4:00 p.m pacific and Friday’s 9:oo a.m pacific.

You can post your questions in the chat room to be answered on air. If the time is not convenient to stop by the live shows, you can listen to the archives at any time on the radio page.

Savy Seniors, Trudy’s newest show is live on Wednesdays 3:00 p.m PST. with co-host, Sharon Rowell covering all the latest news about health, medicine, safety, caretaking and programs that are available to help seniors live a fun, productive and long life.

And, for fun of course Trudy does a Saturday show, 3:00 p.m PST, with readings from spirit given by Seers of the Soul and lots of fun music from the 50’s-80’s. Oldies but goodies.

If you are interested in being a guest on any of these shows, please email Trudy at goldfield_nv@hotmail.com.

Living with HOPE is Sponsored by the Power of Pain Foundation