Review | Gohl Program | Part 1

Review – Gohl Program

By Twinkle VanFleet

Approximately 3 weeks ago I was contacted by Barby Ingle, President of the International Pain Foundation with a program to consider. Barby sent me Dr. Edward Glaser’s phone number and a link to what the program entailed.

Those of you who know me would also know that I had to do more research on the Manual Ligament Therapy (MLT) being offered. I had to learn more! I had to try to understand the concept, and how it might work if it could. It wasn’t just the Gohl Program itself that I researched. I also pulled up each name involved. 3 of which were Dr. Glaser, Arik Gohl, and Dr. Forbes. Then I read up on Monica DePriest and her daughter Haley DePriest who had CRPS and who is well today because of the program and the techniques that Mr. Gohl’s therapy provider her. Testimonials.

http://rsds.org/tag/the-gohl-program/

See how my curiosity piqued even more? We’ve all been told that CRPS/RSD is incurable. We’ve learned that it’s also in our blood not just our bodies. I wasn’t as skeptical as some may have been because I had already, several times, researched techniques involving manual trigger point therapies, acupressure, Chinese medicine techniques and similar holistic treatments dating back to the 1800’s. I had already been treated earlier this year with the Bowen Technique.

I had become so let down by western medicine not being able to relieve my own CRPS, or specifically CRPS Type 2/Causalgia in any way other than by Lumbar Sympathetic Nerve Blocks, medications, and traditional physical therapies that only provided minimal relief, if any, that depressions worsened and hope was nowhere to be found. Since December of 2006 the only steady I had was my Medtronic Spinal Cord Stimulator which reduced or disguised enough symptoms that walking wasn’t as painful as it was prior, and pain medications could be reduced by my choice in the permanent placement.

Complex Regional Pain Syndrome: Systemic Complications
CRPS is becoming the great imitator in pain medicine. This article discusses the symptomatology of the disease, including atypical presentations.
By Robert J. Schwartzman, MD

http://www.practicalpainmanagement.com/pain/complex-regional-pain-syndrome-systemic-complications

Complex Regional Pain Syndrome Guidelines 4th Edition 

CRPS-guidlines-4th-ed-2013-PM

All those things I had accomplished over the years, I found little happiness in. I put on the fake it to make it mask and I wore it quite well. Who would have ever thought that I struggled so badly with suicidal ideations that even my spiritual beliefs couldn’t stop me from wanting to bail on this world.

A mid-metatarsal separation of my right foot (also known as a Lis Franc fracture) January of 2001 in an industrial injury began the last 16 years of uncertainty, loss, rejection, abandonment, failure, and secondary diagnosis’. I still had my upper body though. My hands, fingers, and arms would make up the difference. I could still write type and use social media. In 2009, 9 years after, I got a left foot accelerator pedal installed on our van to be able to drive again. Oh I tried! By that time my left leg was too weak also to drive safely.

I had already had degenerative changes in my spine, but pretended that I didn’t. My legs hurt so bad that it diverted any back pain. 3 years ago my arms started doing things I didn’t understand. Beginning with my left and worsening on the right. By the time I had an EMG my left was reduced and my right just continued to worsen. I’ve never had an EMG or nerve conduction studies on the right side. As 2016 approached the pain in my neck, shoulder, chest, upper and mid back, head, face, the sensations of pulling, tugging, ripping, intense pins and needles, paraesthesia, became so unrelenting that I really couldn’t take it anymore. Bending at the waist started a flare each and every time. I still have to work on that. I had lost feeling in my thumb, forefinger and wrist. My right hand had lost strength.

But wait! I still had my left hand and arm. If I ever needed the gift in being ambidextrous, I would really need it now more than ever to be a part of anything, offline or online.

I had unknowingly believed in hope while other’s told me I was in denial and that I had to accept all those things I wouldn’t be and couldn’t do and would never do. At a higher level of consciousness I saw the light ahead, but was conflicted by the darkness of despair.

I’m already so much better than I’ve ever been in 16 years because of MLT.

I celebrated my 48th birthday while at the program. My son drove my husband to Loomis CA to spend an hour or so with me. First time I’ve been away, on my own, anywhere in 15 years.

While I’m still wrapping my own head around it, it’s not as unbelievable as it seems. I promise.

But wait! There’s more..

To be continued…

Advertisements

8 thoughts on “Review | Gohl Program | Part 1

  1. We are happy that the Gohl program is helping you. What a wonderful Birthday present! Sorry that I missed your birthday! Happy Birthday Twinkle.

    Like

  2. I’ve been studying various types of pain treatments over the past 18 years of my 33 year career and I’ve concluded that there is a missing category of treatments gathered from The Archives of Medicine.

    Realize in The Archives of medicine there are treatments for all the different pathologies of pain.

    And it is so simple; physical complaints are treated with physical therapy.

    Based on what is grounded in the archives of medicine there are 6 golden principles;
    Education, self care, physical therapy, pm&r, medicine and surgery.

    PM&R can be viewed at the novice level PT and then Master Level PT.

    Way back in the eighties I had a glimpse of a few Masters of PM&R. They are few and far between these days in the system.

    The basics: common physical painful pathology began and are embedded within muscles. The only way to treat or cure intramuscular wounds and microscopic injuries is w PT. these microscopic injuries drive pain signals and muscle dysfunctions will only respond to therapeutic physical therapy.

    The mechanism of action of therapeutic physical therapy is different than physical exercise and physical training so know this fact.

    Here is a long list:
    Massage, stretching, yoga, kneading, active release, traction, Inversion, spinal unwinding, osteopathic manipulation, myofascial acupuncture, dry needling, GunnIMS, CraigPENS, Travell tender points trigger point stimulating injections.

    Muscular derived pain problems are treatable and can be “cured” w a team of helpers.

    Oddly enough FDA, Health and Human Services and Medicare deem those treatments not logical.

    There is more to this story can I can place here but if you Google any of those times you can read up on all the different varieties of therapeutic physical therapy.

    Like

    • Good morning, Dr. Rodrigues.

      I believe I’ve spoken to you before, in various threads, or topics. You can add any info here and links so I and others can review. I’ve most likely already bookmarked past info you’ve shared but finding them among 1000’s of bookmarks might be a chore. I’ll Google as well.

      I have no doubt that PM&R approaches are beneficial to injury, disease and pain. My hesitation to believe is in traditional physical therapies and one size fits all applications. This is not to say that I don’t believe in PT at all, I do, but to get to the point of healing, individual approaches are necessary, too.

      My first time in PT nearly 16 years ago was adverse for me. The next time I started it, I spent 8.5 months at minimally 3 times a week x 1-2 hours a session. After all was said and done I could walk again but not without complications. I completed that in January of 2002 after having a screw inserted in my foot and removed 6 months later..

      Another 6 weeks of functional restoration in 2009. 7 hours a day, 5 days a week until completion. Each of the above, bilateral. And again just recently I completed 6 or so sessions upper extremity, spinal.

      In any event, I’ll share part 2 of the above Manual Ligament Therapy soon.

      And maybe I can help others believe, too.

      Thank you for replying.
      ~Twinkle

      Like

    • I’ve been a full body mess, too. Just not all contributed to CRiPS. For me, if it wasn’t diagnosed formerly, I didn’t have it there. Bilateral CRPS. Lower back, hips on down. Right side, worse.

      Yes though, nearly all of me. Including fingers, right side.

      Left side, strong side.

      Warm wishes,
      ~T

      Like

  3. Pingback: Review – Gohl Program | Part 2 | RSD Advisory- Where Chronic Pain & Depression Collide

  4. Pingback: Review – Gohl Program | Part 3 | RSD Advisory- Where Chronic Pain & Depression Collide

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s