The Pain News Network reported https://www.painnewsnetwork.org/stories/2018/1/11/an-open-letter-to-my-senator An Open Letter To My Senator.
I read this man’s story and my heart tugged hard. I have his same diagnosis’ and a few more. Pain hurts.
Some people are under the assumption that I’m either against opioid therapy or that because I’m not using them that I’m some how opposed to them or just not in the same pain or similar need.
I’ve already gone through what so many are going through now. I’ve testified on behalf of pain patients, I was on the CDC conference call that ended up establishing the guidelines. Additionally, my written response is part of the record, too. I did a lot on behalf of pain awareness. I should.have been doing more for myself.
I speak of my progress and healing because people need to know that it wasn’t my choice to be discarded, dismissed, or thrown away. It eventually, after choosing to end my life on 4 separate occasions (after) became my choice to go on without medication management, or Pain Management because what else was I supposed to do? It became my choice to stay.
I still don’t have a provider for CRPS. February will be 2 years.
What I had was MLT right in the nick of time. Next week will be a year since the last time.
What I have now is post.MLT protocols that keep me stable enough. Enough.
Now that I’ve come through it, cleansed my body of all the yuck my goal is to still remain off medications. This is because 16 years of meds regardless of their assistance also damaged my ability to manage myself. Acupuncture, PT, psych aspects to pain is what I’m most interested in. Cymbalta never again.
I reached out via email to another provider today. Not close to my home. Hours away. I’ll figure out transportation upon any acceptance.
Since I began writing this, I did receive a call back almost immediately for my records to be sent for review. PeterAbaci.com