A Review with Photos of Convoy of Hope Sept 15, 2012

Having represented the Power of Pain Foundation as California Ambassador at the Convoy of Hope held at Cal Expo September 15th, 2012 in Sacramento California I’d like to thank the Power of Pain Foundation (POPF), Barby Ingle, Ken Taylor, POPF Board of Directors, Trudy Thomas, Chris Greulich, Convoy of Hope, Susan Gosselin, Jackie Jurek Miss Folsom Cali USA, Kurtis VanFleet POPF Jr. Ambassador and Volunteers of the day Erik, Kharisma and Erykah VanFleet for all their hard work and commitment.

I was and still am thrilled to have been able to promote awareness, distribute information, and answer questions related to Reflex Sympathetic Dystrophy Syndrome, Complex Regional Pain Syndrome/Causalgia and other neuropathic conditions. I also did a balloon release in the name of the Power of Pain Foundation, RSD/CRPS/Causalgia/Neuro Inflammatory Disease, Cure and Hope!

Cure is barely heard on the video as someone was hugging me at the time, but all other words are heard clearly even though I stuttered some. I’m putting together a slide show video of the event and hope to have it ready this month. It will consist of more photos an information of the event not just of the Power of Pain Foundation but of the entire day. All photos were taken by POPF Jr. Ambassador Kurtis VanFleet. A video of the balloon release will also be uploaded soon.

It was such a wonderful day, so many people were given free groceries, clothing, shoes, vision, dental and medical screenings, hair cuts, portraits, breakfast, lunch and so much more. This years turn out of a bit over 5,000 attendees was much lower than the previous years. The economy hurt this event from being even greater. Not enough donations to the Convoy of Hope, people couldn’t afford gas or public transportation to get there. People come from areas outside of Sacramento and weren’t able to this year.

People were camped out the night before the event to get in early, so gates were opened early, but also closed an hour early to accommodate for timing.

Total Guest Attendance- 5,832

Total Family Portraits- 955

Total Guests Prayed with- 4,698

Total Haircuts- 1,000

Total Women Served- (NBCF Tent)- 678

Total Shoes- 800+

Total Participating Organizations- 30

Total Volunteers- 1,763

1,400 Guests Served in the Clothing Tent

95 Dental Exams

50 Vision Exams

300 Received $500 Gift Certificates for follow-Up Vision Care

24 Pregnancy Exams

400 Served in the Job Tent

All these services were Free!

In addition thousands of pounds of food, water, and juice was distributed.

Medical, dental and vision supplies are costly.

Power of Pain foundation Table at Convoy of Hope

Jackie Jurek Miss Folsom Cali USA and Power and Pain CA Ambassador Twinkle VanFleet

Yesterday we received a Thank You Card from the Convoy of Hope. While the card was sent to me it very much belongs to the Power of Pain Foundation as a whole.


It is a shame that our economy is in such bad shape that even a good thing, an all free collaborative event was cut in half by those who were able to attend when we know the 1000’s who couldn’t be there needed the free groceries, medical exams and freebies that were offered and given away.

I pray for all those faces I seen. Those I spoke to and those I didn’t.

Let us all pray… for one another..

and let us TURN PAIN TO POWER… (powerofpain.org)

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Jackie Jurek Appearing with the Power of Pain Foundation at Convoy of Hope Sept 15, 2012

Introducing Jacqueline Jurek, a contestant in the nationally televised “Miss CALIFORNIA USA” Pageant, Jackie will be representing Folsom Cali USA and has joined the team at the Power of Pain Foundation.

Jacqueline Jurek is an aspiring neuropsychologist from Sacramento, California. She graduated High School in 2007 with honors at El Camino Fundamental and went on to SDSU where she recently graduated in May of 2012 with a Bachelors of Art in Psychology. She is currently in the process of applying for Clinical Psychology Grad School at Sac State While taking EMT classes at a Local Community College and interning with the Sacramento Country Coronors office in the Invesigative Department. In her spare time Jackie enjoys the outdoors, staying fit, and spending time with family and friends. Swimming, hiking, country concerts, and being involved with her church are among the activities she enjoys the most. She’s all for standing up for what you believe in, striving for your goals, and making sure not to take life too seriously that you forget to enjoy it.

As a contestant in the the nationally televised “Miss CALIFORNIA USA” Pageant, Jackie will be representing Folsom Cali USA and is excited to join the team at the Power of Pain Foundation with her passion in neuropsychology and is ready to help make a difference in her community and her fellow neighbors.Jackie will be making a special appearance at this years Convoy of Hope being held at the Cal Expo on September 15, 2012 where we will be distributing valuable and informative pamphlets, books and materials on Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome/Causalgia and Neuropathies, raising RSD/CRPS awareness, answering questions, having a photo book of RSD/CRPS limbs available for viewing, a free raffle and more.
Reflex Sympathetic Dystrophy Type 1, Complex Regional Pain Syndrome Type 2/Causalgia is a painful, debilitating, neuropathic and auto immune disorder. Reflex Sympathetic Dystrophy Syndrome (RSD) also known as Complex Regional Pain Syndrome (CRPS)/Causalgia is an illness first discovered by Weir Mitchel during the Civil War. Over 10 million people have been diagnosed in the U.S. Alone. The McGill Pain Index rates RSD a 42 out of 50 and is listed as the most painful chronic disease that is known. While it seems as if it is a rare disease it’s not, yet not many know about it. It’s our goal to change that.
RSD/CRPS is a physical condition. Any depression or psychological manifestations are secondary do to the illness and due to the fact it is so painful to live with.
Practical Management of Complex Regional Pain Syndrome
Eric S. Hsu, MD*
Abstract:  Complex regional pain syndrome (CRPS) describes a diversity of painful conditions following trauma, coupled with abnormal regulation of blood flow and sweating, trophic changes, and edema of skin. The excruciating pain and diverse autonomic dysfunctions in CRPS are disproportionate to any inciting and recovering event. CRPS type I is formerly identified as ‘‘reflex sympathetic dystrophy.’’ CRPS type II is the new term for ‘‘causalgia’’ that always coexists with documented nerve injury. The present diagnostic criteria of CRPS I and II depend solely on meticulous history and physical examination without any confirmation by specific test procedure (or gold standard). There are only few clinical studies with large-scale randomized trials of pharmacologic agents on the treatment of CRPS. Bisphosphonates have been studied in multiple controlled trials, based on theoretical benefit of bone resorption, to offer pain relief and functional improvement in patients with CRPS.Many current rationales in treatment of CRPS (such as topical agents, antiepileptic drugs, tricyclic antidepressants, and opioids) are mainly dependent on efficacy originate in other common conditions of neuropathic pain. There are additional innovative therapies on CRPS that are still in infancy. No wonder all the treatment of individual CRPS case nowadays is pragmatic at best. Although the interventional therapies in CRPS (such as nerve blockade, sympathetic block, spinal cord and peripheral nerve stimulation, implantable spinal medication pumps, and chemical and surgical sympathectomy) may offer more rapid response, yet it is still controversial with unpredictable outcome. Nevertheless, we need to start pain management immediately with the ambition to restore function in every probable case of CRPS. An interdisciplinary setting with comprehensive approach (pharmacologic, interventional, and psychological in conjunction with rehabilitation pathway) has been proposed as protocol in the practical management of CRPS. It is crucial to have a high sensitivity value combined with a fair specificity in revising diagnostic criteria of CRPS. The validation and consensus for new rationalized diagnostic criteria of CRPS could facilitate further research to enhance clinical outcome including quality of life. These endeavors to minimize suffering from CRPS would certainly be appreciated by many patients and their loved ones.
keywords: complex regional pain syndrome, reflex sympathetic dystrophy, causalgia, pharmacologic
More recently we have learned that RSD/CRPS is a Neuro Inflammatory and Neuroautoimmune disorder. It can effect any part of the body. It can spread from a single limb to several and it can involve the internal body as well. This does not happen in all patients, but it can happen.
Not only will Jackie be representing the Power of Pain Foundation with me, but she will be available to take photos and sign autographs with the guests that come to our booth. Come support Jackie, the Power of Pain Foundation and the Convoy of Hope at this spectacular event! We hope to see you there! September is Pain Awareness Month!
If you have any questions or for further information
Contact: Twinkle VanFleet
CAAmbassador@powerofpain.org
916.850-0RSD(0773)
(This #  is not for personal use)
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RSD / CRPS Limbs Montage

By the Power of Pain Foundation “This video goes through pictures of RSD/CRPS patients who have visual symptoms of their extremities (hands, arms, legs and feet). RSD is a Neuro-Autoimmune condition which affects many aspects of the body. For more information visit Power of Pain Foundation. Special thanks to Twinkle and Kurtis VanFleet, and singer Page Jackson.”

Please share!

 

http://youtu.be/nsFs3EHpi-A

We need community help to become an Exhibitor at the Sacramento’s Convoy of Hope

Convoy of Hope

Sponsor/ Donation Request

In-Kind and Cash donations are Tax deductible

For Immediate Release: June 26, 2012

RE: Exhibitor at the Sacramento’s Convoy of Hope event

The Power of Pain Foundation (POPF) is hoping to become an exhibitor at the Sacramento’s Convoy of Hope event. The event will take place on September 15, 2012 at the Cal Expo. The Power of Pain Foundation is a nonprofit 501(C)(3) charity. All donations are tax-deductible. We really need your help! We must raise $2,000. We will be able to reach 20,000+ people who attend the event and distribute awareness information, provide resources to the community, host a balloon launch, and answer questions. We need donations now to raise funds to participate in this great event during September 2012 – National Pain Awareness month.

Our goal at the Convoy of Hope event is to inform the public that Reflex Sympathetic Dystrophy and other neuropathy conditions do exist, there is hope and help.

Please help us attend this event and reach Californians with this important information and resources. Donors of $25 or more will have their names listed on the Power of Pain Foundations Website with over 1,000,000 page views a year and our social media pages (Facebook, Twitter, Linked In), and our newsletter and email blasts, reaching over 8,000 direct people.

Thank you for your consideration.

Twinkle VanFleet

POPF California Ambassador

Media Contact Information:

Twinkle VanFleet

CAAmbassador@powerofpain.org

twinkle@crpsadvisory.com

916-850-0RSD (0773)

More on the Power of Pain Foundation

The Power of Pain Foundation (POPF) provides community based support services that address the needs of chronic pain patients with Neuropathy conditions such as RSD/CRPS, Post Cancer Pain, Lyme, MS, Fibromyalgia, Diabetic Neuropathy, and many more. Accordingly, beneficiaries include patients who are economically and socially affected by these invisible diseases. Whether you have Neuropathy pain or are a caregiver, family member, or friend of someone diagnosed, we help you face the challenges and life changes of chronic nerve pain, head on. The Power of Pain Foundation’s federal ID number is 65-1298571.

The POPF works throughout the United States to promote awareness for Neuropathy conditions. One such condition is Reflex Sympathetic Dystrophy, also known as RSD/CRPS, and Causalgia. More than 10 million people have been diagnosed with RSD in the United States alone. RSD has a score of 42 out of 50 on the McGill Pain Index, the highest of all medical conditions known to man. There is no cure to date.

More on the Sacramento Convoy of Hope event

“The Sacramento Convoy of Hope is a collaborative effort between dozens of local churches, businesses, social service organizations, local government and Convoy of Hope. This all-volunteer event mobilizes hundreds of area residents to serve and make a difference in their community. Strong participation by local businesses, churches, community agencies, and individuals is crucial to the success of this event. Bring your family and enjoy free services and entertainment, with more than 100,000 pounds of free groceries. There will be a health fair, job fair, free medical and dental screenings with local doctors, medical professionals and dentists, kid’s zone, free haircuts, dozens of free carnival games, inflatable’s and live entertainment. Also, free family portraits courtesy of local photographers, community services, dozens of local community service organizations and free BBQ lunch.”

213 Nottingham Drive, Colonial Heights, VA 23834, 804-657-PAIN(7246)
38556 N. Dave Street, Queen Creek, AZ 85240, 480-882-1342
A 501 (c) (3) not for profit organization – 65-1298571
www.powerofpain.org

Checks and Money orders from around the world can be sent to the address above. Please add Convoy of Hope to the memo. Or go to our website at: http://powerofpain.org/donate/ and choose your option.

Paypal account ID- donate@powerofpain.org

All donations go right back into serving you and the Convoy of Hope itself.

I can accept cash in person in Sacramento only. A receipt with both our signatures and information will be required to maintain proper records for the Power of Pain Foundation.

In addition, the Power of Pain Foundation is Hosting an Online Auction Fundraiser to help us become an exhibitor and the Convoy of Hope. We must raise funds to complete the mission of raising awareness and support for the conditions listed above.

We’re also seeking donations Sacramento area businesses who would be kind enough to offer us gift certificates, vacations, airline tickets, accessories, jewelry, hair salon certificates, spa’s, handmade items, etc for our auction.

We’re also seeking area residents who might have items to donate.

Again all items are tax-deductible.

Sponsors include: (updated daily)
Business Donors

Absolute Investigations

Individual Donors
Dani Meyers
VanFleet Family
Taylor Family

Convoy of Hope Fundraiser 2012

Facebook events Convoy of Hope Online Auction Fundraiser 2012

We would be grateful if you joined our event page and attended the auction.

Feel welcome to add me on Facebook- www.facebook.com/rsdcrpsfire

We look forward to serving you!

Thank you!

~Twinkle V.

Living with HOPE Radio discusses Dr. Oz w/ Special Guest Paula Abdul

Hi everyone

I’ll be joining Host Trudy Thomas as your co host tomorrow morning (Tuesday May 29, 2012) on the Living with HOPE radio show at 11:00 am PST (2 pm EST) for a special 2 hour show on how you felt about last weeks Dr. Oz show with special guest Paula Abdul. There has been a tremendous amount of differing opinions, many feel that not enough was said about RSD which led to misinformation, others feel that at least RSD was mentioned on national tv. This is your opportunity to come share your thoughts. And do not forget, if you want to call in live and speak with the host, be sure to dial (347)884-9691. You will be placed into the caller queue where you will still be able to hear the show while you are on hold. We hope to see you there! (Please forward and share to your groups) Thank You!

http://www.blogtalkradio.com/thebodymindandspiritnetwork

 

English: Paula Abdul attending L.A. Fashion We...

English: Paula Abdul attending L.A. Fashion Week at Smashbox Studios, Culver City, CA on March 22, 2007 – Photo by Glenn Francis of http://www.PacificProDigital.com (Photo credit: Wikipedia)

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twinklev's avatarRSD Advisory- Where Chronic Pain & Depression Collide

6th AnnualNeuropathy Action Foundation“Neuropathy Action Awareness Day”
Sheraton Grand Hotel , 1230 J Street, Sacramento, CA 95814
Invited by Executive Director Barby Ingle www.PowerofPain.org to attend this event where she will receive “You Are Our Hero Award”. I’m really excited about this because Barby truly is a hero.
I’m looking forward to joining her and her husband, learning from the guest speakers and meeting others from around the world and from various online venues, support groups who work to raise awareness for Reflex Sympathetic Dystrophy Syndrome, Complex Regional Pain Syndrome and other painful Chronic Pain Conditions.
I hope to see you there!
To learn more about Barby please visit www.BarbyIngle.com
Hosted by the Neuropathy Action Foundation
Wednesday, June 20, 2012
10:00 AM to 4:30 PM
Sheraton Grand Hotel , 1230 J Street, Sacramento, CA 95814Program and Agenda
9:30 – 10:00 Registration
10:00 – 10:10 Welcome and Overview – Sharon Ito…

View original post 508 more words

Kwan Yin Healing with Tim Emerson

Tim Emerson will be Guest Speaker on the Living with Hope Radio Show http://www.blogtalkradio.com/thebodymindandspiritnetwork with Host Trudy Thomas Monday May 21, 7 EST (4 Pacific Time)

Tim is a member of our Group at:

https://www.facebook.com/groups/RSDCRPSAdvisory.InfoSupport/

Tim Emerson started working with energy healing in the early 80s and quickly found himself surrounded by spiritual friends and partners.  He met medium June Burke through friends and had a reading with the seraph Julian.  He travelled to meet and work with NYC psychic healer Elizabeth Stratton.  He learned yoga, studied T’ai Chi with master T.T. Liang, taught at the Delphi Healing Arts Center, and studied the power of sound healing.

But it was the work of L.A. chiropractor Eric Pearl that really brought light work home for Tim.   In 1993, Dr. Pearl’s patients started reporting that they had felt his hands, even though he hadn’t touched them, and shared that they saw other people in the room who weren’t physically there.  His patients soon reported receiving miraculous healings from cancers, AIDS-related diseases, epilepsy, chronic fatigue syndrome, rheumatoid and osteoarthritis, birth disfigurements, cerebral palsy and other serious afflictions.   And then he realized this could be taught.  His story is told in his book, published in 36 languages, “The Reconnection:  Heal Yourself, Heal Others.”

A spiritual friend’s experience of overwhelming positive good feeling got Tim interested in trying “The Reconnection.”  When he did, he felt intense energy, and then a gentle but firm hand on his stomach, steadying him.  There was a golden cord going through his body to his spine.  A large hand wrapped around the base of his spine, and another grasped the cord, and the hands pulled down on his spine and up on the cord, hard, very hard, while the hand steadying him held him down.  He felt a flood of good feeling, and the pain in his back from degenerative disc disease was gone.  A few months later, at an annual physical, his doctor confirmed by reflex test what had seemed impossible—no signs of degenerative disc disease.

A few months later, Tim went through Level I/II training (Reconnective Healing) and Level III training (The Reconnection), and started doing local sessions.  The results were immediate and surprising.  His clients were relieved of asthma, months long abdominal pain, severe muscle fatigue, migraines, and even recovered from head trauma doctors expected would never heal.   Like Dr. Pearl’s patients, Tim’s clients sometimes shared spiritual experiences from their sessions, from feeling like they had been touched to seeing others who weren’t physically present.  They also shared emotional healings, from feeling inundated with positive thoughts to working their way through painful experiences with divorce and childhood abuse to finding their PTSD had calmed.   Clients also asked for help getting through quitting addictions and in raising the positive vibration in a room or home needing healing.

In The Reconnection, which is more about life path than healing per se, clients found a new confidence, while those in poor situations found those situations abruptly ending and new, better ones emerging.  With these experiences behind him, Tim moved from working informally to starting Kwan Yin Healing — http://kwanyinhealing.com — to bring these services to a wider range of people who otherwise would not be aware solutions exist to their physical, emotional, and even spiritual challenges.

Tim also brings his professional experience in business, writing, teaching and music to this endeavor.

His forthcoming book, “Getting Unstuck,”  discusses how people often feel trapped in their circumstances—and that’s not necessarily true.  Whether at the mercy of the economy, or jobs they feel they can’t leave, or creative pursuits they’re rather follow, practical solutions exist.  Why isn’t the Law of Attraction working?  How can we understand this in practical, not mystical terms?  Trapped in addiction?  Tim shares my own experience and ways out.  Trouble grasping a spiritual path?  Tim shares his journey and offers practical tools.  Why aren’t relationships working?  There are some insights here too.  In short, how do we heal our lives so they are the happy, joyous, and free celebrations they are meant to be?  It’s easier than we think.  In fact, it’s our natural state.  The book will be available probably late this year.

Tim’s first Teleseminar Workshop, “Job Creation,”  starting June 15, is a six-week seminar covering a host of issues, misconceptions, and effective approaches to creating work, whether finding a job, changing jobs, or creating new jobs and income opportunities.   The workshop starts with understanding the business world, resumes and cover letters that get read, interviews that get jobs, and proceeds to finding the work that fits who we really are, work that fills true needs, and that uses the unique skill sets we each have.  The workshop also discuss networking to find the “hidden” opportunities along with low budget ways to promote a new enterprise.   Tim draws on his years as a business manager, consultant, columnist and professor to bring practical solutions to these common but solvable problems.

Tim lives out in the country in central New York State, where his dog and two cats enjoy three and a half acres of forest land he planted himself.  He also planted extensive fruit and nut trees, vineyards, berries, and vegetable gardens.  This summer he’s building a passive solar/partially earth-sheltered home that will have near zero energy costs, as well as taking advantage of the beautiful views and outdoor lighting.  He continues to teach professional writing and music, and he plans more books and workshops in the future.

© 2012 Tim Emerson

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RSDCRPSAdvisory Support Group Opens It’s Doors to All Chronic Pain Sufferer’s

Our Group originated to help inform, guide and support those diagnosed with Reflex Sympathetic Dystrophy Syndrome aka Complex Regional Pain Syndrome/Causalgia. For the families and friends of. Nearly everyone with RSD/CRPS will also have Fibromyalgia, although not everyone with Fibromyalgia will have ever have RSD/CRPS. RSD/CRPS is a Neuropathic pain Condition, Fibromyalgia isn’t. Fibromyalgia is still very painful (I know, I have it, too)

We are now expanding our group to offer the same support to all those struggling with Chronic Pain. If you are struggling with a chronic pain condtion of any kind or know someone who is, please let them know about us. We look forward to meeting you

We are a caring, loving, compassionate and understanding group of people who have been through a lot, yet we are not our without faults. We’ve not only endured pain, but surgeries, multiple diagnosis’, dealt with depression, anxiety, fatigue, insomnia. We’ve been mis understood, put down, been called drug seeker’s, addicts and more. Many of us have been alienated from family and friends.

https://www.facebook.com/groups/RSDCRPSAdvisory.InfoSupport/

A support system is necessary to achieve the best possible chance at a quality of life.

Our atmosphere is often playful, laughing and fun loving. Laughter is the best medicine and distraction ever! We will cry together, encourage one another, lift each other up when we fall. If you have an issue with another, please don’t hold malice in your heart… let it go. The stress and the tensing of your muscles will only cause you more pain. Breathe in, breathe out.

People sometimes have bad days, say things they don’t mean, say things they perhaps do mean, but pain often speaks louder than words themselves. Words can be let go, pain cannot be.  

Chronic pain regardless of what the condition, disease or illness is..  is still pain. Neuropathic pain, Neuralgia, Fibromyalgia, Post Cancer Pain, Diabetic Neuropathy it’s all painful.

We want you to have an at ease, calm and peaceful experience.

This Group was created for you the people since it’s birth.

We welcome you, please join us!

Disclaimer: The information contained in the RSD CRPS Info & Support Group is meant to be accurate yet is not intended to replace official sources. Information contained herein should not be considered error-free and should not be used as the exclusive basis for decision-making. Use of our Websites and Group information is strictly voluntary and at the user’s sole risk. Other resources linked from these pages are maintained by independent providers. We do not monitor all linked resources and cannot guarantee their accuracy. We’re a community of patients, family or friends of. We’re not doctors, specialists, or lawyers.

We take threats and discussion of suicide very seriously. If we learn that you are emotionally unstable, even if the cause is chronic pain, we will intervene on your behalf by either notifying family members or calling your local police department. If we learn from your own words, Facebook posts, or from another that you are going to overdose on medications, or harm yourself in any way that could lead to the loss of your life, we will not turn away. This is not meant to interfere in your personal life, but instead to save your life. If you agree to join our support group, you agree to these terms and conditions. You’re not alone!

Need help?
In the U.S., call 1-800-273-8255 National Suicide Prevention Lifeline

Wishing you pain eased days and nights,

~Twinkle VanFleet Administration  www.CRPSAdvisory.com

twinkle@crpsadvisory.com

Sacramento Balloon Release Fundraising Event for the POPF

As the Event Coordinator and California Ambassador for the Power of Pain Foundation (POPF) I would like to invite you to Help raise awareness in a balloon release fundraiser project this summer in Sacramento California for Reflex Sympathetic Dystrophy Syndrome (RSD) aka Complex Regional Pain Syndrome (CRPS) and Chronic Pain issues. Each balloon/balloon bunch will have a 4 sided tag attached. The tag will include your name/business name and short message, POPF Info, and RSD Info.

Saturday, July 21, 2012  – 11:00 a.m. until 3:00 p.m.

Location- To be announced

Pricing is:

$2-1 balloon

$5-3 balloons

$8-5 balloons

$16-10 balloons

Pre-order Balloons at http://powerofpain.org/fundraising, be sure to include your name and short message in the comment section when completing your order. Names will also be posted on our website!

You do not have to be present in Sacramento California to participate. We will release your balloon or balloon bundles for you.

All purchases are tax deductible. The Power of Pain Foundation is a non profit 501(C)(3) Charity.

Not only will this help our cause, but will also give you advertising opportunities whether as a business, organization, foundation or individual. Your name, business name etc will be included on the tag released into the air.

Whoever finds it will not only learn about our us but you also.

For more information and to watch for updates including upcoming location Please visit and check back regularly at Public Event by Twinkle VanFleet and Barby Ingle at https://www.facebook.com/events/314514498596759/

Please help us and join our cause! We’re helping to raise continued awareness for Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome/Causalgia, Post Cancer Pain, and Diabetic Neuropathy.

We’re supporting the Power of Pain Foundation (POPF) in their ongoing efforts to assist patients and caregivers dealing with these and other life altering Neuropathies. Beneficiaries include patients who are economically and socially affected by these invisible diseases.

Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome/Causalgia that effects over 10,000,000 people in the United States alone. It is also an auto-immune disorder.

RSD/CRPS is a painful, progressive and often debilitating, neurological disorder that affects the network of nerves along the spinal cord. The Sympatheic Nervous System is commonly known as “Fight or Flight”. The left side of our brain contains the Para Sympathetic, the calm side and the right contains the Sympathetic. Imagine a frightful event, a tiger enters the room. The fight or flight response is our basic human instinct of survival. Fight the animal off, and face the serious consequences (fight) or get the heck out of there (flight aka fly away).

Image that a car alarm has been activated. You’re not sure why it was barely touched. It continues on with the loud noise. You finally realize that nothing you do is stopping it. Sensitivity may have triggered it but in any event it never shuts off. In this analogy there is no solution to shutting the alarm down. None!

Of course the option would have been to either cut the wires to cease the noise or to somehow dismantle or uninstall the system causing it. The alarm is the non stop seemingly never ending pain that a RSD/CRPS patient feels constantly.

There is no cure to date!   Hope to see you there!

If  you have RSD/CRPS and are interested in possibly working this event with me or can help in anyway please email me at twinklevanfleet@crpsadvisory.com