Our Group originated to help inform, guide and support those diagnosed with Reflex Sympathetic Dystrophy Syndrome aka Complex Regional Pain Syndrome/Causalgia. For the families and friends of. Nearly everyone with RSD/CRPS will also have Fibromyalgia, although not everyone with Fibromyalgia will have ever have RSD/CRPS. RSD/CRPS is a Neuropathic pain Condition, Fibromyalgia isn’t. Fibromyalgia is still very painful (I know, I have it, too)
We are now expanding our group to offer the same support to all those struggling with Chronic Pain. If you are struggling with a chronic pain condtion of any kind or know someone who is, please let them know about us. We look forward to meeting you
We are a caring, loving, compassionate and understanding group of people who have been through a lot, yet we are not our without faults. We’ve not only endured pain, but surgeries, multiple diagnosis’, dealt with depression, anxiety, fatigue, insomnia. We’ve been mis understood, put down, been called drug seeker’s, addicts and more. Many of us have been alienated from family and friends.
A support system is necessary to achieve the best possible chance at a quality of life.
Our atmosphere is often playful, laughing and fun loving. Laughter is the best medicine and distraction ever! We will cry together, encourage one another, lift each other up when we fall. If you have an issue with another, please don’t hold malice in your heart… let it go. The stress and the tensing of your muscles will only cause you more pain. Breathe in, breathe out.
People sometimes have bad days, say things they don’t mean, say things they perhaps do mean, but pain often speaks louder than words themselves. Words can be let go, pain cannot be.
Chronic pain regardless of what the condition, disease or illness is.. is still pain. Neuropathic pain, Neuralgia, Fibromyalgia, Post Cancer Pain, Diabetic Neuropathy it’s all painful.
We want you to have an at ease, calm and peaceful experience.
This Group was created for you the people since it’s birth.
We welcome you, please join us!
Disclaimer: The information contained in the RSD CRPS Info & Support Group is meant to be accurate yet is not intended to replace official sources. Information contained herein should not be considered error-free and should not be used as the exclusive basis for decision-making. Use of our Websites and Group information is strictly voluntary and at the user’s sole risk. Other resources linked from these pages are maintained by independent providers. We do not monitor all linked resources and cannot guarantee their accuracy. We’re a community of patients, family or friends of. We’re not doctors, specialists, or lawyers.
We take threats and discussion of suicide very seriously. If we learn that you are emotionally unstable, even if the cause is chronic pain, we will intervene on your behalf by either notifying family members or calling your local police department. If we learn from your own words, Facebook posts, or from another that you are going to overdose on medications, or harm yourself in any way that could lead to the loss of your life, we will not turn away. This is not meant to interfere in your personal life, but instead to save your life. If you agree to join our support group, you agree to these terms and conditions. You’re not alone!
In the U.S., call 1-800-273-8255 National Suicide Prevention Lifeline
Wishing you pain eased days and nights,
~Twinkle VanFleet Administration www.CRPSAdvisory.com
I ‘m searching for anything . Flowers use to grow under my feet where i walked. Then i was layed up in black. I got to moving again but don’t know what to do so i just keep moving . I’m exausted.
I don’t know how I ended up like this. I went from being beautiful and strong to an outcast
That is very sad to say and even more so to feel.
I have lost friends also. In fact I can’t name anyone offline that I’ve seen more than once or twice in over 5-6 years and others for longer than that. Once I lost my mobility, ability to go out and hang out like I once could, work, everything disappeared. I struggled with the loss for a long time.
I keep to myself mostly, but continue to do all I can for others like me through advocacy and support.
Chronic pain only allows me maybe 15 hours a week now to do what I love doing and that is helping others. It steals more and more from me each day, but I can’t let it beat me.
Don’t let it beat you either.
Always believe you’re beautiful.
Wishing you pain eased days and nights,