The World Autoimmune Arthritis Day was a 6 day long education and awareness event. Beginning May 15th and ending the 21st of May, 2015. Prior to the event beginning one of our board members lost her son from irreversible injuries and damage from a car accident. Barby’s dad was hospitalized and her mom passed away so when the race started she was still laying her mom to rest. The day before the race ended my mom was rushed to emergency surgery to have a pacemaker implanted. Another Board Member was hospitalized 2 days before the event ended and we’re thankful for all she put in before that. As a team we pulled through. All of us everywhere work through our pain and struggles. I commend you all for leading, teaching, raising awareness and educating. Thank you!
I enjoyed attending The Frustrating World of Autoimmune Arthritis Webinar presentation hosted by the (IFAA) International Foundation for Autoimmune Arthritis co-founders, Tiffany Westrich-Robertson, Tami Caskey Brown, and Kelly Conway, I found it educational regarding access to care, medication management and diagnosis. I took another detour with WE GOT AWARENESS! SELF-ADVOCACY IN THE MODERN DAY presented by WEGO Health who I’ve advocated for as able over the years. WAAD15 was a great distraction for all that we had going on in our lives. Everyone having fun to raise awareness for Autoimmune Arthritis and even learn about other non profits.
Our Cheerleader for life!
World Autoimmune Arthritis Day sources and resources
World Autoimmune Arthritis Day Home http://www.worldautoimmunearthritisday.org/
Autoimmune Arthritis Info http://www.worldautoimmunearthritisday.org/autoimmune-arthritis.html
News and Multimedia http://www.worldautoimmunearthritisday.org/news—multimedia2.html
Meet the Non Profit Race Teams http://www.worldautoimmunearthritisday.org/meet-the-nonprofit-race-teams.html
There were 5 Detours to attend, a recording is now included.
Where you could submit the names of your favorite community leaders to be included on a global map of resources.
Patient Suggested Practitioners: Rheumatologists, Immunologists, Dentists, Hospitals & More http://www.worldautoimmunearthritisday.org/patient-suggested-practitioners.html
Where you could submit the names of healthcare providers to be included in a global map for patient resources.
Resource Kiosk/Community Supporter’s http://www.worldautoimmunearthritisday.org/page2.html
The Kiosk included-
The American College of Rheumatolgy http://www.rheumatology.org/default.aspx
The European League Against Rheumatism (EULAR) http://www.eular.org/
WEGO Health https://www.wegohealth.com/
National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov
AND THE WINNER IS….
Coming into the home stretch it was clear 3 teams were going to take 1-2-3, but which order? Throughout the race they continued to pass each other, and it came down to who submitted the most selfies and videos, which continued to pour in until the deadline from POPF’s entire staff and Board Members!
The final tallies were as follows:
Your Top 10
1. Power of Pain Foundation 3,903 mileage points
2. National Rheumatoid Arthritis Society 3,768 mileage points
3. Relapsing Polychondritis Awareness and Support Foundation Inc. 3,394 mileage points
4. International Foundation for Autoimmune Arthritis (IFAA) 2,332 mileage points
5. Sjögren’s Syndrome Foundation 1,736 mileage points
6. American Autoimmune Related Diseases Association (AARDA)
7. US Pain Foundation
8. International Still’s Disease Foundation
9. Spondylitis Association of America
10. Lupus UK
Thank you to the remaining Nonprofit Teams as well. Without your resources and participation this event could not have been possible:
National Ankylosing Spondylitis Society
Creaky Joints/Global Healthy Living Foundation
Arthritis National Research Foundation
National Psoriasis Foundation
International Federation of Psoriasis Associations
National Data Bank for Rheumatic Diseases
Arthritis Consumer Experts/Joint Health
Raynaud’s and Scleroderma Association
Canadian Spondylitis Association
Patient Advocate Foundation
Arthritis New Zealand
We’d also like to thank our Sponsors, Celgene, Pfizer Pharmaceutical, andGenentech. Additionallly the International Foundation for Autoimmune Arthritis and WAAD15 Volunteers who ran and organized the event. And to all of you for attending, thank you!
World Autoimmune Arthritis Day
You can still follow all the happenings as they occurred.
For your review and education, I’ve compiled each participants website link, so that you can continue to learn and share throughout the year. I hope you find each of the following helpful and useful.
American Autoimmune Related Diseases Association, Inc (AARDA) http://www.aarda.org/
Arthritis National Research Foundation http://www.curearthritis.org/
Arthritis New Zealand http://www.arthritis.org.nz/
Canadian Spondylitis Association http://www.spondylitis.ca/
Creaky Joints https://www.creakyjoints.org/
International Federation of Psoriasis Associations http://www.ifpa-pso.org/
International Foundation for Autoimmune Arthritis (IFAA) http://www.ifautoimmunearthritis.org/
International Still’s Disease Foundation, Inc www.stillsdisease.org
Joint Health http://www.jointhealth.org/home.cfm
Lupus Europe http://www.lupus-europe.org/
Lupus UK http://www.lupusuk.org.uk/
National Ankylosing Spondylitis (NAAS) Society http://nass.co.uk/
National Data Bank for Rheumatic Diseases https://www.arthritis-research.org/
National Psoriasis Foundation www.psoriasis.org
National Rheumatoid Arthritis Society http://www.nras.org.uk/
Patient Advocate Foundation www.patientadvocate.org
Power of Pain Foundation www.powerofpain.org
Raynaud’s and Scleroderma Association http://www.raynauds.org.uk/
Relapsing Polychondritis Awareness and Support Foundation http://www.polychondritis.org/
Sjögren’s Syndrome Foundation(SSF) http://www.sjogrens.org/home/
Spondylitis Association of America http://www.spondylitis.org/
U.S. Pain Foundation www.uspainfoundation.org
Vasculitis Foundation http://www.vasculitisfoundation.org/
And finally, I raised my glass, #RaiseYourGlass with nothing inside it, but spirit and hope.
You can find World Autoimmune Arthritis Day on Twitter- https://twitter.com/WAutoimmuneAD
Looking forward to next year, I hope you are, too.