The Power of Pain Foundation began November 26 of 2006 in memory of Melanie McDowell who passed away that same year and in honor of Barby Ingle. Both ladies suffered from intractable pain. Melanie was diagnosed with Reflex Sympathetic Dystrophy in 1994 as result of Gallbladder surgery. She passed away in July 2006. One month after this photo was taken.
Barby being an Endometriosis survivor, developed Reflex Sympathetic Dystrophy in 2002 after a car accident.
Melanie was an RSD patient and advocate from 1994 until 2006 when the family lost her. It was her biggest hope that other patients would receive timely and proper access to care. She was involved in various RSD awareness projects to promote better outcomes for those with RSD and other chronic pain conditions. The Power of Pain Foundation carries on Melanie’s passion and the work that she did by recognizing the efforts of others and the work that they do.
Melanie McDowell Chronic Pain Awareness and Advocacy Award
http://powerofpain.org/mcdowell-advocacy-award/
Past recipients include:
2014 – Dominick Spatafora
2013 – Paula Abdul
2012 – Trudy Thomas
2011 – Barby Ingle
2010 – Mary French, RN
2009 – Mackenzie Bearup
2008 – Dale Lehn
2007 -In memory of Melanie McDowell
In March of 2007 the Power of Pain Foundation was awarded it’s 501 (C) (3) non-profit status. A family led organization from 2006 to 2010 when they expanded to include others. Mr. Jim Ingle was an active board member until December of 2014 when he went into worsening kidney failure. While I was never a board member with Mr. Ingle, I recall fondly attending meetings as California Ambassador in his presence. This gave me the opportunity to meet him, hear him speak and learn what POPF means to him. Mr. Ingle is currently fighting for his life due to restrictions on transplants. My heart goes out to him and his family.
The face of Power of Pain began with the spunky, motivated, courageous, light-hearted, cheerleader for life Barby Ingle, who with the support of her husband Ken. pushed past pain to achieve the mission the family started off with. Comic Pain Relief and the National P.A.I.N. Summit continues to be major yearly events. Bringing both laughter and education to pain patients, caregivers, extended families, and those interested in the topics and treatments offered. Bringing you members of the healthcare community and top influencers to bring you a variety of non invasive modalities, options, access solutions, medication management, cutting edge research, panels and celebrity guest speakers. Comic Pain Relief will leave your endorphin’s fulfilled and your pain eased while you enjoy, laugh, and celebrate.
Barby has used her experiences, education, and extended self-education to become a motivational speaker, best-selling author, advocate, and face of pain to do live radio, television, author articles, appear in public all over the States to help influence positive change for pain patients everywhere. Our first face of pain for Reflex Sympathetic Dystrophy to make it into major media and give notoriety to an illness many of us strive to survive everyday. Giving hope to other’s who are still stuck in the diagnosis phase of their journey, and offering opportunities to others to help support Power of Pain Foundation’s mission.
The Power of Pain Foundation’s (POPF) mission is to educate and support chronic pain patients, specifically those with neuropathy pain conditions. The POPF provides community based services that address needs of chronic pain patients with neuropathy conditions such as RSD/CRPS, post cancer pain, fibromyalgia, diabetic neuropathy, lyme, lupus, multiple sclerosis, arachnoiditis, dystonia, colitis, endometriosis, and more. We fulfill our mission by:
Promoting public and professional awareness of Neuropathy chronic pain conditions.
Educating those afflicted with the painful neuro diseases, their families, friends and healthcare providers on the disabling pain it causes.
Provide action-oriented public education and pain policy improvement through activities and efforts to eliminate the under treatment of chronic pain and increase proper access to care.
Advocating for not only RSD, but dozens of significant pain diseases and syndromes, the Power of Pain Foundation is leading the way for pain patients to share their stories and take part in amazing opportunities.
Music Moves Awareness Casting
Music Moves Awareness: seeks 15-20 chronic pain patients with different background, conditions, ages, symptoms, treatments, to appear in music video, featurette, and media interviews, representing their personal pain journey.
4SisterProductionz is currently casting pain patients for 1-3 day on set filming in Los Angeles to take place in early 2016.
If you are interested in being considered for one of these spots please send us a recent snapshot photos (non professional photos preferred) featuring your look as well as completed form.
Due to the volume of applicants we will not be responding to each and every submission. Chosen applicants will be contacted to move forward in the process over the next few months.
http://www.jotform.us/powerofpain/casting
“Where words leave off, music begins.”
~ Heinrich Heine
A few 2015 Highlights
OIC (Opioid Induced Constipation)
Speaking engagements, panels, and media.
CA AB 623 Abuse-deterrent opioid analgesic drug products
Power of Pain Foundation Co Sponsor Bill with Assemblyman Jim Wood
Abuse Deterrent Formulations
Bring Down the Hammer
http://www.jotform.us/powerofpain/adf
Power of Pain: Changes in Family Dynamics
September 01, 2015
By Barby Ingle, Columnist
http://www.painnewsnetwork.org/stories/2015/9/1/power-of-pain-changes-in-family-dynamics
Power of Pain: Check Your Medical Bills for Errors
August 20, 2015
By Barby Ingle, Columnist
http://www.painnewsnetwork.org/stories/2015/8/20/power-of-pain-check-your-medical-bills
Power of Pain: Tools for Today and Tomorrow
August 04, 2015
By Barby Ingle, Columnist
http://www.painnewsnetwork.org/stories/2015/7/31/power-of-pain-tools-for-today-and-tomorrow
Power of Pain: The Benefits of a Positive Attitude
June 25, 2015
By Barby Ingle, Columnist
http://www.painnewsnetwork.org/stories/2015/6/24/benefits-of-a-positive-attitude
Power of Pain: Take Charge of Your Pain Care
June 15, 2015
By Barby Ingle, Columnist
http://www.painnewsnetwork.org/stories/2015/6/14/decide-your-own-health-outcomes
Power of Pain: There is Great Reason for Hope
June 02, 2015
http://www.painnewsnetwork.org/stories/2015/6/1/there-is-great-reason-for-hope
Barby’s blog
Testimonials
http://barbyingle.com/comments/
Awards and Honors
http://barbyingle.com/awards-and-honors/
Media/Presentations
Barby’s books
More at: www.BarbyIngle.com
www.burningpain.org
Portal to:
RSD CRPS .ORG
RSD Quilts are dedicated to ALL patients and loved ones everywhere who worked to spread awareness or to raise money for RSD.
COMIC PAIN RELIEF .COM
If you haven’t had a good laugh lately, then you should check out this night laughs. COMIC PAIN RELIEF is a charity benefit show
hosted by the Power of Pain Foundation (POPF), a 501-C-3 charity.
NERVEmber .COM
Join us in raising awareness of RSD, Diabetes and all nerve pain conditions. In an effort to increase access to care, patient and
caregiver education, proper treatment option availability, and support for pain patients we are hosting events through the month of
NERVEmber and all year long!
PATIENT AWARENESS .ORG
The Power of Pain Foundation is happy to support and sponsor pain care legislation on a state and national level. Easy Things You
Can Do To Take Action 1) Write Letters to your legislators 2) Call your legislators 3) Spread the word through social media for
others to do the same.
BARBY INGLE .COM
Author Barby Ingle shares her powerful story about how life-changing events force reflection and sprouts new beginnings. Barby
Ingle is a Chronic Pain Educator for the Power of Pain Foundation, as well as a motivational speaker and patient advocate.
POWER OF PAIN .ORG
Power of Pain Foundation (POPF) provides community based support services that address needs of chronic pain patients with
Neuropathy conditions such as RSD/CRPS, Post Cancer Pain, Fibromyalgia, Diabetic Neuropathy, and many more.
There’s so much more to come.
With Motivation for a Cure… We are Turning Pain to Power.
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