A Compilation of RSD(S)/CRPS Links and Related Resources

The following is a list of resources I’ve compiled through research. My passion is to promote awareness and understanding in regards to RSD(S)/CRPS, Reflex Sympathetic Dystrophy Syndrome, also known as, Complex Regional Pain Syndrome and other illnesses and information directly or indirectly associated to it. Some links may be repetitive. There is still no cure to date.

                                                                              ~twinkleEKV/ellajC

American Pain Foundation
Log in Page
http://painaid.painfoundation.org/login.php?page=

United States Department of Human Services
http://www.hhs.gov/

Clinical Trials.gov
http://clinicaltrials.gov/

RSDS – CRPS News
http://rsds-crps-news.blogspot.com/

Psychiatric Times- RSD
http://www.psychiatrictimes.com/showArticle.jhtml?articleID=189500108

NIH Pain Consortium
http://painconsortium.nih.gov/pain_index.html

National Institute of Arthritis and Muscularskeletal and Skin Diseases
What is Fibromyalgia?
http://www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm

Coalition of professional and voluntary organizations concerned with the programs of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
http://www.niams.nih.gov/hi/coalition/resources.htm

Reports
Congressional Justifications
http://www.niams.nih.gov/ne/reports/congree_rep/cj2001/significitems.html

WorkCompCentral
http://www.workcompcentral.com

Workers Compensation Action Network
http://www.fixworkerscompnow.org/

Lawyers.com
Workers Comp
http://www.lawyers.com/lawyers/C~P~California~Employment~Workers%20Compensation~LDS~City.html

Research Legal Topics
http://www.lawyers.com/legal_topics/browse_by_topic/index.php?site=&eid=

Support and Chat Groups

In His Hands with RSD
http://groups.msn.com/InHishandswithRSDandChronicPain

Pain Pals
http://www.angelfire.com/me2/rsdpainpals/links.html

Yahoo RSD Groups
http://groups.yahoo.com/search?query=RSD

Pumpsters (Intrathecal pumps)
http://health.groups.yahoo.com/group/pumpsters/

I Village RSD Chat Community
http://messageboards.ivillage.com/iv-bhrsd/


 

Social Security and Workers Compensation

National Organization of Social Security Claimant’s Representative (NOSSCR)
http://www.nosscr.org/

AFL/CIO Web Site
http://www.aflcio.org/

All 50 States
http://www.comp.state.nc.us/ncic/pages/all50.htm

Injured Workers of America
http://www.injuredworkers4change.org/injured.htm

Job Accommodation Network
http://janweb.icdi.wvu.edu/

Workers Comp Rx
http://www.workerscomprx.com/main.asp

Pain

Central Pain Syndrome Alliance
http://www.centralpain.com/

Pain and Health
http://www.painandhealth.org/

Rehabilitation Facilities
http://www.carf.org/

Office of Rare Diseases
http://rarediseases.info.nih.gov/

National Foundation for the Treatment of Pain
http://www.paincare.org/

NINDS
http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/reflex_sympathetic_dystrophy.htm

NIH Pain Consortium
http://painconsortium.nih.gov/

NORD
http://www.rarediseases.org/

Partners Against Pain
http://www.partnersagainstpain.com/

Pain.com
http://www.pain.com/
Health

NEADS (Dogs for Deaf and Disabled Americans)
http://www.neads.org/index.shtml

CareGiver.com
http://www.caregiver.com/

RSD Org (Directory)
http://www.rsd.org/index.asp

Sympathetic Dystrophy (Directory)
http://www.tunu.com/sear/r/e/Reflex_Sympathetic_Dystrophy.html
Associations

American Acadamy of Physical Medicine and Rehabilitation
http://www.aapmr.org/

American Acadamy of Pain Management
http://www.aapainmanage.org/

ACPA (American Chronic Pain Association)
http://www.theacpa.org/

American Pain Foundation
http://www.painfoundation.org/

APS (American Pain Society)
http://www.ampainsoc.org/

IASP (International Association for the Study of Pain)
http://www.ampainsoc.org/
Medical Societies

ASA (American Society of Anesthesiologists)
http://www.asahq.org/

Diplomats of the American Board of Pain Medicine
http://www.abpm.org/diplomates/index.html

PainEDU
http://www.painedu.org/

National Hyperbaric Oxygen Therapy
http://www.rsdtherapy.com/?gclid=CO6R4o-Ip4UCFQvOJAodNShW0A

Informative Links

RSD Advisor- http://www.rsdadvisor.com

Clinical Research Studies- http://clinicalstudies.info.nih.gov/detail/A_2000-NR-0200.html

Tame the Pain- http://www.medtronic.com/neuro/ttp/index.html?c=overture_ppc&kw=rsd

American RSDHope- http://www.rsdhope.org/

Aware RSD- http://www.aware-rsd.org/

Neurology Channel- http://www.neurologychannel.com/rsd/

Reflex Sympathetic Dystrophy Syndrome America- http://www.rsds.org/index2.html

Microsurgeon.org- http://www.microsurgeon.org/rsd.htm

AboutRSD- http://www.aboutrsd.com/

Pain.com- http://www.pain.com/

RSD Online- http://www.rsd-online.org/

Reflex Sympathetic Dystrophy Association of California- http://www.rsdsa-ca.org/

Treatment, Education and research- http://www.rsdrx.com/index.html

RSD Friends- www.rsdfriends.org

RSD Info- http://www.rsdinfo.com

RSD Awareness- www.rsdawareness.com

RSD Escape- www.rsdescape.com

Sympathetic.org- http://www.sympathetic.org/

RSD Foundation- www.rsdfoundation.org

Podiatry Channel- http://www.podiatrychannel.com/rsd/

RSD Care- www.rsdcare.com

For Grace.org- www.forgrace.org

California RSD Lawyers- http://www.california-rsd-lawyers.com/
National Institutes of Health
http://www.nih.gov/

Division of Thoracic & Foregut Surgery
http://www.stronghealth.com/services/surgical/thoracic/RSDS.cfm

Sudeck`s dystrophy
http://www.sudeck-dystrophy.com/

Pain Defeat
http://www.paindefeat.com/wiki/PDFT/RSDS

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3 thoughts on “A Compilation of RSD(S)/CRPS Links and Related Resources

  1. Love all the links – I tracked-back and posted onto my blog. I will also place all these in my forum and will give this site credit for the extensive list that it is.

    Lots of hugs, pain free of course,
    Christine

    Like

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