CRPS/RSD and Suicide

Over the years we have heard that suicides for CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy) patients is the highest of all suicide rates.

This may not be as necessarily true as it seemed. This also does not entirely mean it’s false.

The following is an excerpt by the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) -

Suicide and Complex Regional Pain Syndrome (CRPS)
On June 23, 2012, Jill Harkany-Friedman, PhD, spoke to the RSDSA Board of Directors and invited guests on the topic of CRPS and Suicide Prevention. Dr. Harkany-Friedman is the Senior Director of Research and Prevention for the American Foundation for Suicide Prevention (AFSP). RSDSA asked Dr. Harkany-Friedman to speak because of recent suicides in the CRPS community. She assured us that although most individuals have fleeting thoughts of ending one’s life, suicide is relatively rare (12 out of 100,000). Furthermore, 90% of those who die by suicide have a diagnosable mental disorder, i.e. depression, anxiety, alcohol or substance abuse, and a potentially treatable mental disorder. We are posting her PowerPoint® presentation for your information.

I respectfully give all credit to the RSDSA for the above information.

While I respect the educated view of Dr. Harkany-Friedman the thought presents itself that she seems to be stating that nearly all those CRPS related suicides indeed had and underlying mental disorder therefore was the reason they took their own lives. I am not certain though. The estimates were on an over all amount of suicide percentages rather than CRPS specific.

I do apologize in advance for any misunderstandings.

I have rarely ever used offensive language in my posts, but in order for the general masses to understand what I mean in a blunt manner, I will come right out and say it, “Chronic severe pain is a mind and head fuck”. It becomes mental. We all know, at least most of us do, in order for us to feel pain, our brain has to feel it first.

That’s why coping strategies, meditation, relaxation, bio feedback, breathing exercises, guided imagery, aroma therapy and so many other techniques are necessary tools for the management of pain.

I have a hard time believing each of the CRPS suicides also had a mental disorder. Of course we’re mental. That doesn’t mean we have a mental disease, also.

It’s not all in our heads it’s in our bodies!

This also bring up another thought and that is if those suicides were CRPS misdiagnosis’. I hate to bring this up but there are some people who desire to be sick, who seek attention, who thrive on pity, who watch and listen to others for their symptoms so they can take what they learn to their own doctors and claim the same illness. Those people would have mental disorders.

In these cases I would hope the doctor’s were watching the objective findings rather than only listening to the subjective.

A little example,

30 people on a plane

Someone starts coughing and gagging suddenly, itching themselves all over. Making a scene for all to notice.

The person gets out of his seat and stumbles into another passengers and coughs all over him.

That person begins to worry he is catching something. He starts to itch himself.

Suddenly others are doing the same.

Next thing you know every one is hacking, coughing, itching and going nuts.

They all think they’ve contracted some illness, epidemic..

The problem is no one has it’s all in their heads. They only believe it to be true.

The first person never had anything at all. It was just a test.

This only goes to show the power of suggestion.

For some reason I tend to think that if deaths were related to CRPS/RSD we wouldn’t know that it was. Somehow some way it would be found and reported that that there was a psychiatric condition present or un diagnosed and that was the reason behind the suicide. Since nearly all CRPS/RSD patients have been diagnosed with depression secondary their illness, I have a feeling the depression would be used as the cause and not the horrible pain itself.

Suicidal ideations would be almost natural for anyone going through a painful hardship. The mind tries to free itself from ongoing pain and turmoil. It may plan and think of ways out, do things it wouldn’t normally do when more at ease, may even harm, cause bodily injury and so much more.

Self harming, cutting and causing bodily injury isn’t always a sign of suicide or suicidal ideations, sometimes it’s just a diversion to the original pain one is constantly feeling.

I think most CRPS/RSD’rs who have suicidal thoughts don’t really want to die at all, on the contrary they want to live.

They just need help managing their pain and most of them aren’t getting it.

~Twinkle Wood-VanFleet

12 thoughts on “CRPS/RSD and Suicide

    • You are most welcome Midnight.

      You definitely are not alone. I often have those ideations myself. Most don’t understand. I truly hope you are able to find someone who can help you get through those contemplation’s. It makes me sad to know we think of ways out.

      Sending a hug, faith and some hope your way…

      ~Twinkle V.

    • I am crying as I write this. I have had this painful demon (CRPS) since last summer when I fell and broke my left wrist. Never had such pain in my life. I’ve been going to PT and OT since September. I am miserable. I don’t think anyone knows or understands the pain I am in. I am normally a pretty happy person. I hate life now. I hope you are okay. Just keep your chin up. I should talk!

    • i have had rsd for 14 yrs and think about it often it nice to see that there are others that understand what we as chronic pain patients go through. thank-you

  1. Pingback: Can You See Me Now | Inspirational Stories

  2. Reblogged this on Inspirational Stories and commented:
    CRPS is also known as the “Suicide Disease”. This is because the pain is so debilitating,and with no cure… There is really no light at the end of the tunnel for many CRPS fighters. With that being said, many CRPS fighters get to the point where they just can not take the pain anymore.

    Unless you personally have this syndrome,you truly do not understand how much pain your body can withstand and still be alive. Many of us try and describe the pain,or throw out the McGill pain scale score to provide something to compare the pain to. (CRPS lands at 45.5 out of 50 on the McGill pain scale. Which is above amputation of a limb(40/50) Childbirth w/out meds (32/50) chronic back pain 28/50,etc)
    It’s recorded to be the most painful pain condition in the books.
    Yet, why does no one know about it?!!? It drives me nuts!!!

    Anyway, I wanted to reblog this post 1) bc it addresses an important topic regarding CRPS 2) I agree 100% with the blogger on this. (Btw-this blog should definitely be checked out! Extremely informative!)
    3) if there is ANY CRPS/RSD angels/Fighters who has reached to this point, and are considering to do this, PLEASE know that their are people here to help you! And talk to you , provide you with coping mechanisms.
    Please remember, in the past 5 years, treatments/ knowledge/Research/etc. have advanced dramatically! Not to mention, everyone’s hard work to spread awareness is starting to make a huge impact! All of this is getting us closer to a cure! If not a cure,atleast more effective treatments!
    So keep holding on! Give hope chance to float! Because it will! We are fighters, and we will win this battle!
    If you,or Someone you know with CRPS/RSD is having thoughts of suicide, please go to RSDhope.org and RSDS.org, their are support groups/chats available 24/7, going through the same things as you,they know the pain you feel. Talking to them will only help you.
    Don’t let CRPS defeat you. We are strong people! We will kick CRPS’s ass!(pardon my French) BUT! It’s the truth! ;-)
    Again- check out this blog! There is a lot of great info!
    Thank you so much!
    Heather Lynn!

  3. Thank you so much for this article Twinkle and your thoughts as well, really great info. I’ve been fighting/dealing with our monster RSD for about 3yrs now and to be honest, I’ve contemplated suicide multiple times. How can any RSDer NOT think about it off and on?? We live with pain that most people can only pray they never have. My feet are red/purple/black most of the time and feel like someone has poured boiling oil on them. I believe the level of pain we experience is referred to as “exquisite pain” by physicians. It’s no wonder a lot of us ponder ending it all sometimes.
    Thanks again for this article and I hope you have a low pain day and rest of your week. :-) Karen

  4. Pingback: Chronic Pain Can cause misery - an open letter - Friars OsteopathFriars Osteopath

  5. The worst is seeing your best friend go through this. I want to move out of my country; but I am scared for my best friend and worrying that one day I will come back and find a gravestone.

  6. Dear Hannah
    You sound like an amazing, most caring and loving friend. Continue to support your best friend, help him/her find resources to assist if you are able. You can’t stop living because you feel obligated to protect and save. What you can do is be the best friend you’ve been. You have to save your heart, too. This is a very hard position to be in.
    I wish you the very best!
    Sending a hug your way…

    ~Twinkle V.

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